De diagnose!

Met de arts een telefonische afspraak gemaakt om de uitslag van het bloedonderzoek en hopelijk ook de diagnose te bespreken. Iets later dan  gepland belt de hematoloog me op, biedt direct zijn excuses aan voor het te late bellen, en geeft dan direct de diagnose. Myelofibrose. Pfff eindelijk weten we waar we aan toe zijn. Mijn beenmerg wordt langzaam aan vervangen door (bind)weefsel. Ik schrik er niet van, had er eigenlijk al rekening mee gehouden. De arts wil vrijdag alles verder doorspreken, maar omdat ik hier al rekening mee gehouden heb, heb ik nog een aantal vragen. De eerste is of ik in aanmerking kom voor een stamceltransplantatie. Jazeker, dat wilde ik vrijdag bespreken, maar u bent hiervoor zeker geschikt. Mooi! Volgende vraag van mij, hoelang gaat dit ongeveer duren. Wauw, hou maar rekening met 1-1,5 jaar. Dat is wel wat zeg. De rest van de vragen bewaar ik wel tot vrijdag als Marjolein en ik naar het spreekuur komen. Wat waardeer ik deze arts om zijn doortastendheid, woordgebruik en zijn heldere uitleg.
Direct daarna familie gebeld en vele mails verzonden met deze uitslag. Heftige diagnose, maar eindelijk weten we waar we aan toe zijn. Vrijdag het vervolg.


Inmiddels hebben echt veel vrienden, familie, kennissen, collega’s en leveranciers blijk van steun gegeven. Vele mails, kaarten, telefoontjes, boek, DVD en bloemen gekregen. 
Als ik besluit via de mail iedereen op de hoogte te stellen van de diagnose kom ik er achter dat het hier veel meer dan 100 personen betreft. En allemaal begaan met mijn gezondheid.
Voelt echt wel goed. Mijn dank naar jullie allemaal!

174 gedachten over “De diagnose!

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  10. Dear Michelle, I’m sure that I have truly little understanding of autism and what it is like for a child nor for that child’s parents and family. But what I do know, you and Riley have taught me. Thank you. Peace.

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  21. Hi Adzi,Thanks for the compliment!  The background I have on the blog is a repeating image applied to the body tag with CSS.  For example:body {background:url(‘images/yourbackground.jpg’) top repeat-x #fff;}This bit of CSS will apply the background image to the top of the page.  Repeat-x will make the image repeat horizontally, so when you create your background, make sure that the left and right sides will match up evenly, to avoid a seam.Hopefully this helps you out a bit!  If you have any other questions, ask!  I look forward to hearing from you again.

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  44. Ahhhhhhhhh, after a complete day of cleaning a house that feels too small until I clean it… I so want to share your dream superpower #2.  However, I am currently too tired to try to blink.

  45. You really don't see the difference between securing the 1967 borders and the 1948 borders?Security is having the high ground and control of unstable areas inside and near your borders.Soon that's likely to include the Sinai.But that's crazy talk, of course. The sane thing to do is pull back to the 48 borders and then everything will be fine. Just like it was in 1948.The less territory Israel has, the more secure it will be. And once Arab snipers are operating in East Jerusalem again– then the security will be off the charts.But it will the fault of those damn settlers.

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  47. Hei og god morgen :))Jeg blir gjerne med pÃ¥ trekningen av dagens gave. Har ønsket meg en slik pute lenge…..Har fulgt bloggen lenge og syntes den er flott og inspirerende. Ha en god advent videreHilsen fru vimsete

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  51. Greetings! I know this is kinda off topic however I’d figured I’d ask. Would you be interested in exchanging links or maybe guest writing a blog post or vice-versa? My website addresses a lot of the same subjects as yours and I think we could greatly benefit from each other. If you are interested feel free to send me an e-mail. I look forward to hearing from you! Wonderful blog by the way!

  52. I have changed my hair in every color under the sun ,and I am a serial rearranger in terms of the house furniture … I am trying to convince my husband for another change of the furniture in our flat these days … !I love your photo work and the love for cats , I have seven of them !

  53. Meg: bougainvillea needs to be pruned with more regular dedication than I manage to keep it under control. Some folks nearby seem to keep it perfectly well tamed with a judicious weekly clip/shear, but that level of habit is beyond me.In other weekend diversions, one of Sprog the Elder’s birthday presents was Portal 2, which is, uniquely in my experience, fun to listen to while he is playing. Stephen Marchant voiceover for the win.

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