Controle bezoek

Vrijdag 4 november om 12:15 een nieuwe afspraak bij de hematoloog in het UMCU. Vooraf bloed laten prikken zodat tijdens het spreekuur gekeken kan worden hoe snel de achteruitgang van mijn bloed gaat. Er zijn nu 3 metingen in 4 weken. Gelukkig blijkt, mede omdat ik het heel rustig aan doe, dat mijn Hb waarde niet snel daalt. Omdat een bloedtransfusie ook voor vele complicaties kan zorgen, en omdat ik nog boven de grenswaarde hiervoor zit, gaat dat voorlopig niet door. Over 3 weken terugkomen voor een controle en dan vooraf weer bloed laten prikken. Nadrukkelijk te horen gekregen dat als er iets niet goed gaat ik direct moet bellen. 
De transplantatieprocedure verder doorgenomen. Dinsdag gaat mijn broer bloed laten prikken. De uitslag is dan over 2 a 2,5 week binnen. Als hij donor kan zijn (25% kans) belt het ziekenhuis hem en mag hij het mij vertellen, anders belt het ziekenhuis mij direct. In dat laatste geval wordt er dan gezocht naar een donor uit de Europese donorbank. Wat is het toch knap allemaal. De daadwerkelijke transplantatie zal wel in januari/februari plaatsvinden.
Ben lid geworden van een patientenvereniging voor patienten met myelofibrose. Vandaag met de post veel documentatie gekregen. Daarbij zat ook een uitgebreid verslag van een patient met myelofibrose (MF) die een paar jaar geleden een transplantatie heeft ondergaan. Zeer onder de indruk van wat me te wachten staat. Wow, dat is toch wel heftig allemaal.


We hebben ons opgegeven voor een bijeenkomst morgen in Nijkerk van de contactgroep stamceltransplantatie. Vroeg naar bed dus om uitgerust daar naar toe te gaan.

159 gedachten over “Controle bezoek

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  5. ちょいとご無沙汰している間に、まぁちゃんの”楽しい”秘め事がガンガン増えてる。。。うれしす♡ それにしても、東京のどこぞでもしもお会いした事もないエリカちゃんに出会えたら、「すてきな結婚式だったのね〜♡」って突然話しかけてしまうかも。。。「まぁちゃんの変な友達に声かけられた」って言われたら、それあたし。。。きっとあたし。先に謝っておくわ、ごめんね。

  6. We are still … We are still suffering the effects of this crisis… the real estate market is still very depressed and if you want to “take advantage” of the great investment deals you must have a lot of cash available to burn. Was this answer helpful?

  7. alright slu+s, speaking of ‘high horses’ i happen to know this universtiy student and hes not on a high horse… Hes unpopular… Maybe if you all werent so inferiororitaly scared of his form of humour he could actually have some mates…regards, Joel Dimetrios

  8. Great concert in old Zelmer factory in Rzeszow, Pl, yeasterday, i enjoyed it a lot. Thanks, dziÄ™ki, i lost my glasses jumping there, but don’t regret Hope You had good time in Rzeszow, cheers

  9. I have an HTC Mozart bought on Orange France Network. But I’m in the US since January on T-Mobile network with my phone and I’m also still getting the “Your phone is up to date” message …Does someone knows if my phone is going to be updated one day ?Is there a “proper way” to force the update or flash the ROM ?

  10. Insomma…la prima tra le donne..con un giorno tutto dediacto a lei!!AUGURI DI TUTTO CUORE…lo sai che per noi sei un mito!!! fantastico il nuovo taglio…sei una favola!Ehi…ma ci prendiamo anche una fettina del tiramisf9 perf2…festeggiamo con te e finalmente assaggiamo questa particolare fava tonka!!!un abbraccio tesoro!

  11. that the Westphalian system began to break down “when” rather than “because of” the competition for overseas territories between Britain and Germany.Then you must explain why the Westphalian system did not begin to break down when Britain and France competed for colonies from 1688 to 1815 (a competition that was far more vicious, and for far higher stakes, than the Anglo-German colonial rivalry after 1870).

  12. Ainda a respeito do “marxista”, não sei se a tese de que as diferenças salariais dentro da empresa são influenciadas pelas relações de poder (para citar uma tese que tem estado em voga nas dicussões deste blogue) até não será mais “anarquista” do que “marxista”.

  13. oh, wie wunderbar! Auch wenn es hier nur isländische Hochsommertemperaturen von knapp 20 Grad hat, so ein coconutjuice könnte ich jetzt dennoch vertragen! Mmmmmh! Wieder super-tolle icons! liebe Grüße

  14. Hej Sanne:-)Tak for en fed hjemmeside, jeg er en ung kvinde på 25 der jeg er omkring 167 cm høj og vægten idag siger 78,9 hvilket jeg er rigtig ked af.jeg er idag gået igang med din effektiv kur og glæder mig til at se min vægt falde.Hilsen Nathalie

  15. Wow, you must have some willpower! I've signed up for the fabric diet challenge at cut to pieces which is no fabric buying for 2 months, which I think I should be able to stick to but a whole year?! I don't think I have the self-restraint for that! Good for you, though, and good luck!

  16. Megan – perhaps American firms have goods that they would like to sell in Europe, and they are worried that they might get stopped from doing so by a patent holder getting an injunction, years before they have the chance to show that the patent itself is invalid. Presumably this wouldn't be quite as fatal to an American firm as it might be to a European one for whom this is its home (and perhaps only) market and/or its place of manufacture; but they still wouldn't like it.

  17. Tindakan anestesi oleh P.An. dan Sp.An.di IGD RSUD DR.SOEDARSO PONTIANAKBulan————P.An——-Sp.An——JumlahMar-09————-15————–3———18Apr-09————–72———–32——–104May-09———–107————20——–127Jun-09————110————–5——–115Jul-09—————-67————-0———-67Aug-09————–59————-0———-59Sep-09————–83————-0———83Oct-09—————72————-0———72Nov-09————–81————-1———82Dec-09————-121————0——-121TOTAL————-787———–61——-848Persen—————93%———-7%—-100%Resiko 1 – 4– termasuk bedah khusus dan Bedah khusus.

  18. Kibic Polski pisze:1/Wisła ma najlepszych kibiców w Polsce, ale Kielce pokazały na FF, że są w stanie się do nich zbliżyc poziomem /ostatni mecz w Kielcach niestety kibice Vive „zburaczyli”, ale może się do finału PO ucywilizują?/2/ Vive ma najsilniejszą drużynę, ale Wisła pokazała w ostatnim meczu, że jest w stanie powalczyc.Jeżeli 1/ dodac do 2/, to = szykuje się Finał Play-Off, jakiego jeszcze nie oglądaliśmy ! Oby…Pozdrawiam Jednych i Drugich, do zobaczenia na Play-Off !!

  19. DLB, mai ridicol mi se pare să pui semnul egal între fumători ÅŸi “violatori, pedofili, zoofili ÅŸi traficanÅ£i de droguri”. Există vreo asemănare între primii ÅŸi ultimii? Dacă tu o ÅŸtii, împărtăşeÅŸte-ne-o ÅŸi nouă, rogu-te.

  20. d’ailleurs, je repense à une habitude de collégienne que j’ai un peu gardée, je le confesse… Coller des photos de ma famille, des dernières vacances, etc. dans mon agenda ! Avec le numérique, ça se perd un peu je pense…(Mélusine, ado un jour, ado toujours !)

  21. There is no such … There is no such thing as mortgage modification. I dont know a single person that had a legitimate hardship that got a modification. The banks went out of their way to continue to deny them. Was this answer helpful?

  22. My favorites are #3 &#4 as well as the last one. very nicley handled. The film processor did a good job on the scans! I really love the style that you have developed very rich and yet soulful. What a great memory for such a nice couple.When they look back on these in 25-30 years the will see the young kids so in love and be so happy that they chose you to capture them so well.Congrats!

  23. O representante é bem fraquinho sim. Não entendo porque o mengão não chegou lá, não foi bem no brasileirão, rabiscou o rebaixamento e até agora ainda precisa jogar para disputar a sul-americana. Não seria Mengão Quase sempre ?

  24. 10:35 pm, October 14, 2012|That was fuckin amazing, great acting as always, solid opening. And I loved they stuck to their promise more balls to wall no fuckin around and much gorier. And they surly pushed that :0) can’t wait for this season its going to be a good one for sure. Just kill off the fuckin wife already shes pissing me off. If I was your husband I wouldn’t forgive you for cheating on me even if you thought I was dead. Fuck that noise.

  25. Per Francesco“PS non direi che LeMay abbia ottenuto quello che chiedeva, di bombardamenti, e infatti gli USA hanno perso.”L’equivalente di 640 bombe atomiche, il lancio di tre volte gli ordigni usati da tutti i contendenti nella Seconda guerra mondiale, non è “ottenere ciò che chiedeva”?

  26. / Ano perfeito pra vcs e 2011 vem mais sucesso pra vcs e todo mundo que curte ,ama e admira o grande trabalho dessa GRANDE dupla chamada JOÃO NETO & FREDERICO,parabéns e sucesso,muita Paz,amor,alegrias,saúde e felicidades pra JN&F,Família e Equipe JN&F nesse ano que se inicia.Feliz Ano Novo!!!!GD Star Ratingloading…

  27. JoséComo sabe trabalhei em publicidade e cinema.Veja os filmes, que grandes máquinas , com tudo focado e nos ângulo certo e outras coisas que um profissional sabe.Os filmes sérios foram os das pessoas, todos mal enquadrados etc!Não acredita que existam conspirações, ainda bem para si José!Eu sou mais Holmes "A singularidade é quase inevitavelmente uma pista"

  28. Quand j’ai des aphtes sous la langue et que ça ne passe pas, je vais voir un médecin, qui me donne une consultation.Quand j’ai un mot au bout de la langue et que ça ne passe pas, je peux écrire à , qui me donne (éventuellement) une consultation – si je demande gentiment.Nos “camarades de casse” seraient donc des consultants, ou des consultés ?

  29. GBAmerica // March 17, 2010 at 8:27 pm Hi GB,Let’s hope not. IMO, this is WAY out there.I still find it very hard to believe that every elected official and anyone of social/political stature in America is conspiring against We The People. We know that Barky and his gang are rotten skanks, but the rest of them against every American citizen?I have a hard time wrapping my brain around that concept.

  30. Hej igen. Jeg er løbet ind i et problem jeg ikke har set før. jeg bruger en Win2008R2 som printserver. Denne er er jo kun 64 bit.Når jeg så vil tilføje en 32bit driver til printeren – additional drivers, så skriver den at jeg skal installere driveren fra en 32 bit type 3 pc. Kan man ikke direkte tilføje en 32 bit driver mere på serveren??? Skal man virkelig ud på en 32bit klient og installere derfra???? Har du løst det på en smartere måde?

  31. Plenty of other good places to eat in BraÅŸov.Note however that NOBODY in this fucking city knows what BOILED papanasi are, they only know of FRIED papanasi!Also, although I know you don’t care about meat, NOBODY can make a *good* ostropel here in BraÅŸov.OTOH, while we’re at cakes, I have to say that Vatra Ardealului makes them rather heavy, so for the next time I’d recommend you the new Krauss confectionery that’s now at Dean’s Pub, on Republicii St. (a much smaller Krauss is on Lunga St.).

  32. Je ne parle nullement des parents célibataires là!À l’arrivée de ma fille, on s’était posé la question à savoir si je resterais à la maison avec ma fille. Résultat : on n’avait pas les moyens! Meme à 2!On habitait juste dans une 4 et demi et on n’avait pas de voiture de l’année!

  33. Foreplay is great, I’m pretty damn sure we all knew that already, most of us at least……. I’m really not sure what all the religious faffing about was for, seems to have caused offence to some people and just confused others! I don’t like to be disrespectful or down on anyone or anything, yet I can appreciate some of the feelings of a few of the other commenter’s here, sadly.On a positive stance, let me just share knees! Caressing and kissing the back of the knees is a must and an oddly erotic place, something to be shared for sure.

  34. Ui, dann hat es doch noch geklappt mit einem Schäferhund Herzlichen Glückwunsch. Die Suche war sicher nicht einfach. Hat sich Iris Tochter zwischnzeitlich auch für eine Rasse entscheiden können? Oder sind die “Hundepläne” zurückgestellt?Liebe Grüsse nach Aschaffenburg

  35. Después de un descanso para comentar los vestidos de los Oscars, hoy seguimos con fiestas personalizadas, aquí os dejo algunas …Estamos trabajando para contestaros a todas, poco a poco iremos dando ideas a cada una de vosotras, estamos trabajando en analizar vuestras respuestas, gracias a todas por participar!!Besosss

  36. Beautiful colors and love that ikat fabric! I’ve been searching for fabric for MONTHS for a project and keep going to that one but still haven’t made up my mind. I’m so indecisive I can’t stand it. lol Can’t wait to see what you’re up to! Curiosity kills me! hahaHave a wonderful weekend, Crystal!

  37. Hello I am over from Miss Minimalist (and realising I may have to minimalise the number of crumbs in this keyboard if this is going to make sense). Already subscribed so will be back. Glad to see I am not the only one who thinks having a relationship with a non-minimalist would be difficult. Thanks for the thoughts about the printer too. I have thought about not replacing mine next time, but at the moment I do seem to need it. Not sure about the 100 items thing, I may qualify but haven’t counted nor plan to

  38. Wow, Meesh – these are beautiful. I don’t know if I’d have the heart to actually eat them, they’re so pretty! I make shortbread, but mine are dropped by the spoonful, lightly pressed with a fork, and sent to the oven. Yours, on the other hand, are a work of art!

  39. je vois fort logiquement poker.fr que ce soit sous pc+firefox ou pc+ie …idem pour linux, ubuntu en 2nd à chaque fois…tes 2 navigateurs utilisent-ils le même proxy ? ont-ils la même localisation ? peut-être que l'un attaque un google.com et l'autre un google.fr ?

  40. Oui, bien sûr vous pouvez l’utiliser et je vous remercie vivement de solliciter mon autorisation. Ces textes sont comme des partitions de musique et ne demandent qu’à être joués. En retour n’hésitez pas à me dire concrètement comment vous éprouvez ce monologue et comment vous envisagez de le jouer. Cela m’intéresse beaucoup pour l’écriture d’autres textes de ce genre. Merci à vous de le faire vivre une nouvelle fois et courage !

  41. Yes, just look at the MSM. Look again at the Wall Street protesters and compare them to the 60s crowd. All we knew about the 60s crowd was what the MSM told us. Today the MSM are still pushing the protestors agenda but the alternative media already has them sliced and diced for all who want to know.

  42. CHRIST!! This was extremely impressive to say the least, good god, what a relief, wish he’s been post-interviewed. LOVE your intro… indeed, “…massive release of pressure of something that doesn’t belong inside of us” is what floats this boat.

  43. det här har int alls med ditt inlägg att göra nu..men, visst ha du skrivit ett inlägg där du funderade över nan2, skillnaden på stora o små paket, för på små är det ju rekommenderat från 4 mån, o på stora är det från 6 mån.. WHY? Kom du fram till det? / Pia

  44. AAAAAAAAAAAA JoannaDieses Haus dieses Haus genau dieses Haus auf das warten ich seit WOCHEN.Ãœberall ausverkauft und ich weiss nicht auf wie vielen Listen ich mittlerweile für dieses Haus stehe….Ich versuch mein Glück und hüpf in den Lostopf….Natürlich ist mein allerliebster Artikel von Gingar genau dieses Haus :-)65743985109313847589 Knutscha SandraAch so falls ich nicht gewinne und du noch eine Quelle für das Haus hättest ich suche und warte weiter 😉

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