De laatste onderzoeken en de uitslagen.

MAANDAG 23-1 onderzoeken.

Echo onderbuik.

Even voor zes uur loopt de wekker af. Dat vond ik altijd al vroeg, maar nu helemaal, en zeker omdat we op vrijdag nog laat naar bed zijn gegaan. Kan me niet herinneren dat ik, sinds ik ziek ben, zo vroeg ben opgestaan. Kwart voor zeven in de auto omdat ik om 8 uur de 1e afspraak heb staan. Moet me nuchter melden voor een buikecho. De arts wil weten hoe groot mijn milt is vlak voor de behandeling, zodat we later kunnen meten wat het effect  van de stamceltransplantatie hierop is. We zijn ruim op tijd en precies om 8 uur 😉 word ik naar binnen geroepen. De organen in de onderbuik worden bekeken en de milt blijkt 14-15 cm te zijn. Dat is een paar centimeter groter dan normaal (12,5cm).

Longfunctietest.
Om 9 uur melden we ons bij de poli longziekten voor de longfunctietest. Met een knijper op mijn neus doe ik de verschillende testen. Hard inademen, uitblazen, en adem inhouden. Ben zo ontzettend blij dat ik nooit heb gerookt en wel veel gesport. Alleen de test waarbij de hoeveelheid zuurstof die in mijn bloed wordt opgenomen wordt gemeten gaat minder. Tja, met zo’n laag Hb is dat te verwachten. Niets verontrustends dus.
Beenmergpunctie.
Tot nu toe heb ik alle onderzoeken gewoon ondergaan zonder er tegenop te zien. Eerlijk gezegd is het allemaal ontzettend interessant om te zien wat ze allemaal kunnen en lijkt het soms alsof ik naar iemand anders zit te kijken. Een tv programma of zo, waarin goed wordt uitgelegd wat er allemaal gedaan wordt. UIteraard besef ik echt wel dat het om mijzelf gaat en ben ik niet naief.
Om 10:30 meld ik me bij de bekende afdeling waar ik straks kom te liggen, maar nu voor een beenmergpunctie/botboring. Dit onderzoek heb ik in het Hofpoort al eens gehad (zie item woensdag 21 september 2011). Er doen over dit onderzoek vele verhalen de ronde en velen vinden het een pijnlijk onderzoek. Toch wel een beetje nerveus ga ik mee naar een kamer op de afdeling waar 2 bedden staan, gescheiden door een gordijn. In het bed naast mij ligt een donor waarbij de stamcellen worden geoogst! 
De verpleging  legt goed uit wat er gaat gebeuren. De arts komt binnen en geeft nogmaals duidelijk aan wat ze gaat doen. Deze “nul-meting” van bot en beenmerg is nodig om te bepalen of er leukemiecellen inzitten. Als dit zo is krijg ik straks bij de opname een zwaardere chemokuur. Ruim na de transplantatie wordt er nog een keer punctie gedaan om het verschil te bekijken.
De arts tekent met stift de plaats aan waar ze gaat prikken. Eerst een verdoving en na enkele minuten inwerken wordt met een heel klein appelboortje een stukje bot uit mijn heup weggehaald. Door het gemaakte gaatje wordt beenmerg opgezogen. Tenminste, dat is de bedoeling. Kenmerkend voor mijn ziekte is echter dat het beenmerg langzaam wordt vervangen door bindweefsel en dat kan ze niet opzuigen. Een “drytap” heet dit. Dankzij de verdoving voel ik echt nauwelijks iets (!), waardoor we besluiten om vlak naast dit gaatje nog een tweede boring te doen. Helaas levert ook deze boring geen beenmerg op. Ze gaat dit aan de arts doorgeven. Mijn conclusie is in ieder geval wel dat het hard nodig is dat ik nieuw beenmerg krijg 😉 en dat de diagnose dus juist is.
Met een pleister op de plek van de boring moet ik nog een kwartiertje blijven liggen om nabloeden te voorkomen. Ik krijg de slappe lach als ik naar het plafond kijk en besef dat dit de komende weken wel eens een bekend uitzicht kan zijn. Om een uur of twaalf verlaten we het UMCU weer. Moe maar toch wel voldaan dat alle onderzoeken achter de rug zijn gaan we naar huis.
Thuis.
Sinds we weten welk traject ik moet doormaken staat niet ons leven, maar ook ons huis redelijk op zijn kop omdat alles schoon en hygiënisch moet zijn om infecties te voorkomen. Natuurlijk was het huis al schoon,  maar iedereen in huis wil alle risico’s vermijden. Er wordt dus in huis veel gesopt en gepoetst. Vandaag is mijn schoonzus thuis in de badkamer hard aan het werk. Dank aan iedereen die zich zo druk maakt. Zelf hou ik me afzijdig van de schoonmaakacties. Heb er gewoon de energie niet voor. Zo heeft ieder nadeel zijn voordeel.

Dinsdag 24-1. de uitslagen.
Om 15 uur melden we ons voor een bezoek aan de arts waarbij we de uitslagen van alle onderzoeken door zullen nemen. Voor het eerst moeten we lang wachten in de wachtkamer. De arts begint keurig met excuses voor het uitlopen van het spreekuur.
We nemen de uitslagen door : pompfunctie hart is goed (=66% = normaal), thorax/longfoto goed, geen virale infecties, ECG goed, longfunctietest goed, buikecho/milt goed. De uitslag van de beenmergpunctie laat nog op zich wachten. Het blijkt niet erg te zijn dat er geen beenmerg is opgezogen. Het stukje bot bevat voldoende informatie. Alle lichten voor de behandeling staan op groen.

Is er een bevestiging dat de donor kan doneren op het gewenste moment?
Eigenlijk hebben we geen vragen. Toch wel een teken dat de voorlichting erg goed is geweest.
O,ja natuurlijk wel een vraag. Is de datum nu al definitief? Met andere woorden, heeft de donor bevestigd dat de 23e februari de stamceltransplantatie kan plaats vinden. De opname (13 februari) en transplantatiedata (23 februari) waren immers onder voorbehoud dat de donor zou kunnen.
De arts loopt de kamer uit om dit na te vragen en komt, helaas, terug met het bericht dat er nog geen bevestiging van de donor binnen is.
Dat is een tegenvaller. We weten het nog steeds niet definitief.
Aan het einde van de middag ga ik even op bed liggen en val gelijk in slaap.

Volgende afspraak is op 7 februari 14:00 voor een controle bezoek.

4.895 gedachten over “De laatste onderzoeken en de uitslagen.

  1. Heej Dolf! Ik ben blij voor je dat de testen positief waren :)! Even duimen dat de donor kan op de 23e! Groetjes! Loekie

  2. Hoi allemaal, wat een boel onderzoeken zeg. Maar complimenten aan jou dolf, je weet het allemaal helder en simpel te vertellen! Nu is het natuurlijk weer niet zo simpel als dat het allemaal lijkt. Maar het is wel heel begrijpelijk wat er gebeurt en staat te gebeuren! Fijn dat er groen licht is voor de transplantatie, nu maar hopen dat het tijdschema niet te veel verloopt. Ik duim voor een vlotte bevestiging. Hoe eerder de transplantatie is geweest hoe eerder je weer kunt beginnen met vooruit kijken en opkrabbelen. Succes met de wachttijd overbruggen! Xox
    Ingeborg

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  22. Natalia comentou em 20 de agosto de 2011 às 12:15. Julia, tenho o batom Bossa Duda Molinos, é parecido com o myth? Eu gostaria de comprar o myth, mas tenho medo de comprar cores muito iguais.. Gostaria de um nude mais apagadinho.. Sugere algum?? Bjs

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  24. I know you have some hard days coming up with Sandys birthday and death-breath deep and go talk to her and cry -all of its ok. Hang in there -there are alot of us thinking of you

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  27. Awwww That would be awesome if you came to Australia! Or even if I came to the UK I would def make a special trip to see you. Aussie woman have won your heart Vix!AND that woman was right to tell you your mad if you didn't buy that coat. Looks gorgeous! I especially love the umbrella as well. xxx

  28. On the upside he often points out that the Israeli military disseminates porn to its local enemies knowing it demoralises societies, while the Israeli military’s most fervent defender in America, the ADL, gives awards to America’s biggest pornographers. I do like that about Jones. He’s also written some good stuff on the HIV/AIDS hoax and presumably a lot of other things given that Linder and wintermute often used to recommend him..

  29. a mari’ famo a capisse…io non ho detto una benamata ceppa sul seguito di LIa. Ho detto che tra le persone che leggono il suo blog, ci sono persone che darebbero qualunque cosa per vedere morto il suo amante. e lei di questo se ne è fregata.Ahmed er cammellaro de Sciarmeschecche

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  31. Titlul e greu. Din el ar putea rezulta ca o face pe victima dar are nu stiu ce interese sau probleme ascunse pe care nu le lamuriti. Asteptam mai multe date sau o pozitie mai clara din partea dvvs. care sunteti un formator de opinie si stiti mai multe decat noi muritorii.Eu personal sunt dezamagita de acest scurt expozeu in care nu spuneti nimic dare aruncati un titklu exploziv.

  32. Hola Iñigo, encontré tu blog cuando estaba buscando una foto de laksa de Singapur. Me gusta la foto en tu blog! Soy de Singapur pero estoy viviendo en Argentina ahora. Muy bueno blog, muy interesante!

  33. Donc vous n’êtes qu’un autre qui pète plus haut de son cul : la « Voie de Velours » c’est autre chose, demandez à votre curé… encore qu’il soit assez cultivé pour connaitre son histoire… parce que désormais même plus au séminaire les études ne sont plus ce qu’ils étaient… Bien, vous n’être vraiment pas un interlocuteur valable… bonne nuit.

  34. MeOctober 24, 2012 at 1:03 pm“the chelsea game should have opened your eyes but clearly not …we were the better team except for poor goal keeping and school boy defending”You are a joke.We would have won the game, if we didnt concede two goals hahaha

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  36. It was awesome having KyleJ back in the house, even if he brought his classic 80′s music back with him. Did you see me fly over the golf course today Kyle? I was considering landing there to see if Tenny was outdriving you again… 😉

  37. Am murit de ras la rapoartele fetelor. Mi-a placut si mie cartea, dar parca a lipsit putintel descrierea 🙂 oricum, a fost geniala. Bex si Liz, va vreau ca prieteneee!!! Mi-a placut de Cammie si am apreciat ca in final a ales ceea ce as fi ales si eu, adica prietenia si o viata de spion! Adica de ce sa vrei sa fi normala cand e clar ca esti nascuta sa fi super? Imi place recenzia ta 😀

  38. I’ll admit I don’t really know what sort of stories are simple enough for small kids), but wouldn’t it be possible for folks with artistic talent to make short books/comics and post them online?(I do have much drawing ability)I know a ton of people write queer or feminist versions of Harry Potter or other media (and theres original fic too), and there are comics and fic geared towards teens and adults…

  39. Great post Ross. I particularly identify with bullet 5 and suggest that public acknowledgement of the fact shows a ‘distinguished’ degree of maturity…rather than just ‘getting old’. Enjoy your birthday

  40. actualmente estamos viviendo en una sociedad que s muy materialista debido en gran parte al contenido publicitario del cual estamos rodeados, es dificil darnos cuenta atra vez de estas diapositivas la realidad de la vida para nosotros como jovenes nosdebe quedar de lecciòn el aprender a valorar las cosas buenas y valiosas de la vida para no volvera cometer errores màs adelante.11º 9 matinal

  41. 1. 我說「淫褻」或「不雅」只是為了方便,我贊同把第 II 和第 III 類改稱為「限制級」、「禁制級」之類的主張。其實《淫褻及不雅物品管制條例》亦應改稱為《資訊分類及管制條例》,明明是關於審查的法律,不必托詞裝飾。如你所說,現時的分類太籠統。另行立法或令指引更清晰,我認為都是可行之法。你覺得另行立法較好,我無所謂,總之法例夠清晰便行。2. 澳洲的做法是由法定機構訂立指引,再刊憲生效。戴(耀廷,I presume)教授的想法與此類同。問題是,香港政府並非民選,因此若「指引委員會」的做法太極端,巿民無法阻止或讓下屆政府撥亂反正。較適當的做法,是由一個臨時的指引委員會先歸納巿民的意見,草擬一份指引,然後再把它納入法例,每隔一段時間再檢討。這樣雖然令法例變得臃腫和改變較頻仍,但立法會起碼可以阻止太過份的指引出現。

  42. Elva / Soprattutto complimenti per tutte e due!La tematica del articolo molto attuale fa si che l’interesse sia ampio e senz’altro realizato con buon criterio da parte di queste due studentesse.La intervista costituisce un valore in piu per il lavoro realizato.

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  44. Altro messaggio:I reside in the USA and The 1 MW plant for Greece is manufactured in the USA. I confirm that a very important plant of 1 MW will be ready to be put in operation within the year in the USA: our men are working on the authorizations.Altro ancora:Dear Paul Segers:The 1 MW plant will work 24 hours per day fro the Customer of Defkalion. It will not be a demo-plant, it will be a regular productive plant.In the USA we are manufacturing other 2 plants of 1 MW of power.Warm Regards,Diciamo che ti sei persa un paio di stagioni 🙂

  45. Yeah, I agree the Americans can do something like this well, once they decide to do it. The problem for years has been lobbying by industries to prevent a project like this. Consumers are thought of as cattle, to be driven past each watering hole and expected to drop cash along the way. Somehow corporate America forgot where all those dollars actually come from.Crisis does lead to opportunities. Let’s hope some of those are seized.

  46. Carla – Thanks so much Betsy for the words and the images. I was thinking some of the same things while we were walking through that field, like here I am in that moment I always dreamed about, wow.

  47. Hi Isabel, I'm not going to read those comments – just wanted to say I'm glad you're still around once and a while. Congrats on getting some jobs that you are interested in and keeping writing (and wearing what you want to)! Beautiful photos are lovely but there really is not enough real life portrayed (just the good parts of life) on many sites.

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  49. jetzt ist es soweit. Wenn sich dieses Gerücht bewahrheitet, dann gibt es entlich den definitiven Kaufgrund für die PS3 für mich.Da man für für die PS2 mittlerweile mehr als nur ein kleines Vermögen ausgibt, würde mich eine geplante Neuauflage, dazu noch im Bundle, mehr als freuen. Und dann auch noch in HD-Qualität. Oh freude schöner Götterfunken …

  50. To be perfectly honest, if this is the standard of debate you get from nationalists, I might as well give up on this site. It seems that the SNP has never done anything wrong ever, all the country’s problems will be solved the minute we get independance – regardless of what form that will take, or what the state of the country, and every possible thing that is in any way bad for the country (next week – Gravity is a unionist conspiracy to keep people in Scotland) can be laid at the door of the London parties – particularly Labour. It seems that nothing Labour (or indeed any of the other “London” parties) can say or do will ever change your mind.

  51. Helló !A segítségeteket szeretném kérni .Egy Gundel idézetet keresek és nem igazán jártam eddig sikerrel.Sajnos nem tudom már a szövegét, csak azt, hogy arról szól, hogy az igazán kiváló minőségű ételek fogyasztása közben , az azt fogyasztó társaság az nem másról, hanem az ételről beszél. Vagy valami ilyesmi.Nagyon fontos lenne ! Előre is köszi !!!

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  55. El problema de los españoles se llama gobierno del PP engrosado por "lumbreras" como este clón de Ansar.¿Vacaciones?Escucha Soria, para irse de vacaciones hay que estar trabajando…¿comprendes?Rtve pepera va a tener que reponer "Barrio Sésamo": …dentro…fuera…Saludos

  56. i agree with the first sentence, but the rest of it is a curious position for a pacifist, lefty.Ha, ha. But please read more properly. I merely wrote that if one country is allowed to use drones, then all other countries must be granted the same RIGHT. I did NOT say that they should exercise this right.

  57. You have been apart for six months and with the court date which will make it final coming up you are starting to panic and not trust your judgement. You know in your heart what you need to do. This man has had chance after chance after chance. It doesn’t sound like he is even ready to change. In the six months you have been apart, has he tried to reconcile with you? Count your blesings, do not call him, and follow through with your divorce. It’s for the best. Good Luck to you.

  58. Hi, did you know that many teenagers across Australia now think that there really was an emperor Nasi (or Nazi) Goreng! Most of my daughter’s friends believe the Dad in the Ad! Will you be doing a follow up to put things right?? The take home message is that kids get most of their information from ads, not the internet! I do love the ad myself though! xx Linda

  59. Google propose actuellement des multitudes de services très performants (youtube, gmail, docs, calendar, android, etc…) mais très souvent on a du mal à se retrouver dans tous ces services, voire même savoir qu’ils existent… Google+ permettra de faire le lien entre tous ses services… le composant social, partage etc.. est ce qui manque à google…

  60. I would be a lot more interested in tying Google+ videos and YouTube together. It is insanely stupid that a video I upload in Picasa or Google+ is completely disconnected from YouTube, even though it is plainly obvious they are using the same hosting and even player for the videos. I often have to upload the same video to both services as a result.comment credit: Jason Keirstead (Tech Crunch Reader)

  61. As soon as I initially left a comment I clicked the Notify me whenever new comments are added checkbox and now each time a remark is added I get 4 email messages with the exact same comment.

  62. didn't read where Mrs. Weintraub resigned from the Political Law Group with Perkins and Coie, did you? So, until I see a formal resignation, termination letter, or similar, she is still associated as far as I am concerned."You also didn't read the Code of Federal Regulations, particularly with respect to the FEC's prohibition on outside employment. All ties were cut in 2002, when she became a member of the Commission. Duh.

  63. Then where is the bar? I can't see the bar progress even though I uploaded a video that is within your requirements: mp4, xvid format, mp3 audio, right audio bitrate, right video bitrate. All is right, what's wrong is the bar. Where is it?

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  67. Hi Dr — I’m hoping you can answer my question. Thin PCOS patient. Didn’t respond to clomid – on follistim injections. Worked the first time with IUI, pregnancy, miscarriage. Round 2. On Monday my E2 levels were good — 809, 3 follicles at 15-16. Went back the next day and my levels were at 513. They don’t know why they dropped, they don’t think I ovulated on my own. What is the cause of this? Poor egg quality. They still had me trigger and wanted to do an IUI 18 hours later. Confused and don’t know the cause of the drop. Can you help. 29 years old…Thanks

  68. I love this! I first saw it on Pixiwoos Sam, and her YouTube vid for an easy 10 min make up and she looked gorgeous wearing it! I have been wanting to purchase it but couldnt justify the money and the shipping from the US but now they have a uk website, Perhaps i should treat myself! Especially now that you recommend it! Your posts are always so spot on, you seem to mind read the items i want to purchse and do excellent reviews on them! Thank you!Lil xx

  69. It is a great story. I laughed out-loud. Artists think differently, see the world in ways others don’t, be glad! You are one of the lucky ones, IMO. I don’t understand those other people (non-artists). But I totally get artists. I am an artist.

  70. No he won’t because that would be “RAAAACIST” and the whole world knows that that is the most evil of all evils. One must sacrifice the lambs on the alter of political correctness – or in less biblical terms, just allow the savages to rape our 12 year olds while the police turn a blind eye. Until we respond in kind and turn our savagery upon these savages they will be allowed free rein to destroy our values, our culture and our DNA.

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  72. Colin, Whew, I’m afraid my response has turned into an entire post. In fact, I think I will post it separately. Check out what Frances writes above. And if you get some time, check out my friend’s blog — like you have lots of time in high school, ha! Anyway, thanks for coming by. Out of hundreds of posts, this is the first time I have gone into this topic. There’s plenty of other stuff here, and hopefully you will find some of it useful, encouraging and challenging.

  73. Marojejy,pas possible de vous répondre, ma vraie famille se compose de trois personnes! Petite, trop petite, mais très « verte » et peu difficile à convaincre! Sinon, dans mon entourage, aucun espoir « d´amélioration », au contraire, le niveau de conscience régresse à la vitesse grand V, désolée de ne pouvoir vous rassurer.Il faut se raccrocher à ce blog comme à une boué de sauvetage, une sorte de radeau de la Méduse!!!Bonne journée à vous.

  74. Ay, Natalia, qué ilusión lo me que dices!! o sabes cuñanto me alegro de que hayas cocotteado para tu familia, y que hayas triunfado!! Eso es que le has puesto muuuuucho amor, un ingrediente clave sin el cual no se puede cocottear… Un besote enorme, y bienvenida a CocotteMinute. ésta es tu casa! Un besote muy fuerte y felices fiestas a ti también. Cocotte.

  75. Bästa bloggpost jag läst på länge! Håller med Per om att upplägget med att låta två unga, fria personer lyssna helt utan fördomar och sedan säga sitt är genialiskt!

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  78. “oh well, there is nothing we can do about it”… and people screamed. And it WAS fixed to be better.If you want more instant road rage, and people speeding like crazy because they are sick and tired of NOT making the next light (oh, I have seen this SO much), then this is the time to fix it.

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