CT, uitslag en besluiten nemen

Zondag 12 en maandag 13 januari.
Als voorbereiding op de CT van maandag ben ik zondag begonnen met een eetlepel vloeistof bij iedere maaltijd. Maandag het laatste beetje ingenomen met een glas water. Bijwerking, diarree…. net zoals de pacrtinib…. en dat is niet handig als je door een ziekenhuis heen moet lopen. In de auto voel ik me beroerd. Iedere dag gaat het wat minder. Nu heel veel last van mijn buik. We zijn op tijd in het UMCU en weten de afdeling radiologie inmiddels goed te vinden. Maar ai, we hebben niet opgelet en zijn op de verkeerde locatie. Moeten de CT in het Wilhelmina Kinderziekenhuis hebben. Er wordt gebeld dat we er aan komen, en we lopen door een hele lange ondergrondse gang van het UMCU naar het WKZ. En als je maagkrampen hebt dan is de gang nog veeeeel langer. In de wachtkamer bij het WKZ krijg ik een kan met een liter vloeistof die ik in een half uur naar binnen moet werken. Die gaat er echt niet helemaal in met die maagklachten, maar dat is geen ramp. 
De CT heb ik al vaker gehad. Eerst een infuus in mijn arm. Een “proefritje voor de overzichtsfoto” en dan nog een opname met de contrastvloeistof er in. Beide opnames duren misschien elk 10 seconden. Daarna nog even wachten om te laten controleren of alles er goed op staat en we kunnen weer naar huis.

Donderdag 16 januari.
De hematoloog is vandaag bij de radioloog langs gegaan om samen de CT te bekijken. Het goede nieuws “er is niets geks aangetroffen, op je hele grote milt na”. Ok. Blij dat er niet nog meer ellende in me is gevonden, maar wat gaan we nu doen om me beter te laten voelen?
De laatste dagen lig ik alleen maar in pyjama op bed of de bank. Na het nodige denkwerk komen we tot de volgende besluiten. 
Ik ga stoppen met het trialmedicijn pacritinib! Mijn milt is niet veel kleiner geworden, en ik voel me alleen maar slechter i.p.v. beter. Met ingang van morgen ga ik eerst beginnen met een prednisonkuur en met een lichte chemo. We hopen dat ik me daardoor snel beter ga voelen. De lichte chemo zou mijn leucocyten, de witte bloedlichaampjes, omlaag moeten brengen (zijn nu 43 i.p.v. tussen de 4 en 10). De prednison zou een eventuele ontsteking de kop in moeten drukken.


157 gedachten over “CT, uitslag en besluiten nemen

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  3. Doutor, bom dia!Por favor, o que vem a ser extra-sistoles duplas ou triades? No meu caso, depois que aumentei a dose do cloridrato de sertralina, isso acontece dia sim, dia nao…A psiquiatra disse que era ” normal”. Fiz um ecocardiograma e um teste fisico, o que nao apresentou nada. As vezes sinto a ES, seguida da parada e a batida forte e, em seguida depois do batimento normal, sinto outra ES. Seria isso a ES dupla? Dessa forma tenho medo da morte subita.Agradeco desde ja!

  4. John Sullivan , a man although now gone , shall never be be forgotten . His work , his talent , his ability to make us laugh, cry and to care about the characters can only be seconded by Shakespear himself.God bless you John and thank you for the amazing memories you have left us.R.I.P

  5. Hey Mag, I have the original Tokidoki print (the 1st one released) in Luna and Stellina, Citta Rosa print in Zucca and Campeggio, Amore in Buon Vaggio and Paradiso in Ciao Ciao 🙂 Thanks for all the comments, ladies! There will always be people who have nothing better to do but pass judgement on others. It’s pathetic, really. But I’m glad to have all of you to share my passion for makeup with!

  6. Fr. Z — I’m trying to be in Rome on the 22nd, will you still be there? If so, I would be blessed to meet with you for a desertif or whenever you have time! We’re hoping to attend the new Nov. 24th installation (?) of new Cardinals (w/ the Malankara Syriac contingent! Viva HB Baselios Cardinal Cleemis Catholicos!)- viva il Papa!

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  8. Beautiful (as always..;) )! I think it works very well with the hair-colour, but not because it’s harsh: imo, it compliments the slight exotic look…;)I too try l/s over l/s sometimes, but I should experiment some more…

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  19. OH sabber, sabber, sabber. Ich weiß, wer heute noch solche Gläser bestellt und dann anfängt zu backen *lalalala* du bist meine Heldin ;-)Liebste GrüßeEmily

  20. Mmmmm, I love blue cheese. Well, now I do, before living in France you couldn’t get me to try the stuff. I like melting a big chunk of blue cheese in some cream and butter, to make a sauce for pasta. Hello cholesterol

  21. Leo disse:Gabriel T.Então Gabriel, como vc disse o Jobim fez a alteração e na minha opinião, de forma acertadíssima, visto que a ToT é sim a parte mais importante desse processo. Do contrário poderiamos adquirir aéronaves por valores bem menores e com capacidades similares as do FX2. Quanto a experiência supostamente negativa que a FAB teria tido com os franceses temos que lembrar que foi em um contexto bastante diferente do atual, tendo o Brasil evoluido para uma posição bem superior a antiga, politico/estratégicamente falando.

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  30. Endlich mal ein positiver Artikel über Kaffee, der die wahren Vorteile des kostlichen Getränks hervorhebt. Als kleine Ergänzung vielleicht noch: Eine Studie, die ich vor einiger Zeit gelesen hat gezeigt, dass Kaffee vor dem Schlafen gehen den Schlaf fördert und zu einem erholsameren Schlaf beiträgt.GrüßeMax für den günstigen Kaffee

  31. El programa de instalación de firmware solo funciona sobre chips suministrados por Ahorraentinta. No es un programa para resetear chips usados ya sean originales o no; que seguramente es tu caso. Si realmente es este tu caso, lo que tienes que hacer es adquirir uno de nuestros kits de recarga (tóner y chip) e instalar el firmware que realmente corresponde a tu impresora para que pueda trabajar con nuestro chip.

  32. Amen! I can have a beer (please note the word/letter “a” for all those who believe in prohibition)after a hard day of work while watching SHU play. This is America. Now all I need is for it to be a reasonable price, but beggers can not be choosers.Did they explain or show how they cover the upper seats/level for not well attended games?BB

  33. Uncharted var juh ett bottennapp sÃ¥ det stänkte om det. >,< HÃ¥ller med till viss del men det finns nÃ¥gra titlar endÃ¥. Gravity Rush som sagt, Wipeout, LBP Vita och resident Evil. Av nÃ¥gon anledning kommer jag tillbaka dÃ¥ och dÃ¥ till Everybodys Golf. ^^Joel Persson bloggade nyligen –

  34. Hola!Jaja, no pasa nada, yo también me hago un lío con tantos tipos de harina. La harina panadera es harina de media fuerza, ideal para panes normales, y la que El Amasadero vende como “harina de fuerza” es más adecuada para panes con huevo o grasas añadidas, tipo brioche, pan inglés, pan de molde, etc. Cada fabricante o envasador decide el nombre que aplica a sus harinas, en este caso te aconsejo que preguntes directamente al experto en harinas, Andrés Bonilla, y que te aclaré cualquier duda al respecto. Puedes escribirle a .Un saludo

  35. I’m curious…Typically when I submit my sitemap Google is super prompt at updating. Lately however it is taking 3-6 days to update…Is there anything as a webmaster I could be doing to slow down the process? It’s just one site in particular. My other sites when submitted are updated quickly.Also, in my webmaster account no errors are being indicated.Any advice?

  36. I’m just going to answer the question and move past the comments about it always being black people, etc. Dab some aromatherapy oils right under your nose. Something like eucalyptus should be strong enough.

  37. The detail on your sweater is *very cute. I know exactly what you are talking about in terms of dressing for the cold. I work indoors so I can some flexibility but at the same time, things like shoes are a *huge* deal in the winter (ie: practical, practical, practical!).I've enjoyed reading through your blog and seeing your move from the US to Finland.

  38. 9e7akaterina:cc1понятно, спасибо! а если права менять, то платить что-то надо и долго ли это все делается?d5

  39. whatever are you doing in texas? come to dallas! great antiquing here. i do love gruene though. hopefully you're doing some wine tasting and some tubing in the hill country too 🙂

  40. Si el evento esperado es cíclico y su anterior visita correspondería al cataclismo de los días de Noé.Esto sucedió en el año 2.370 a E.C. — Según la cronología Biblica.Hoy nos encontramos a 4.381 años desde entonces.Más el tiempo que todavía falta para que tal acontecimiento vuelva a suceder.Si como todo indica, este gran astro, arrastra una creciente y enorme cola de escombros. — meteoritos y demás cuerpos celestes, esta misma lo frena de manera considerable.Sería imposible en tal caso saber la fecha o el momento exacto en que hará su aparición.

  41. Creo recordar, no ha muchos años, un pueblo cuyo nombre me acuerdo -Marbella-, que hubo una portada igual -tiempos de Gil-. Lo ví anunciado en Mupis de Madrid.Ya en nuestros días, hay una empresa que se dedica -cobrando- a hacer Holas a recién casados con las fotos de la boda y su literatura caracteristica: La novia apareció radiante con un traje de Diego Areso.. Nadie me ha regalado nada.. No hay terceras personas.. Llegó conduciendo su coche como un joven de su edad.. El novio apareció fresco, burbujeante y ofreció todo su amor a.. bla..bla..

  42. why did the site change,they say more points, better things, different things. now you can only put in 120 per week, i put in over 200 a day when it was 10 a day, not so fun any more, not to much offered with diet coke, sprite, just alot of not to much!!

  43. sergio · giovedì, 6 dicembre 2012, 1:07 pmimmagino che sarà adeguatamente compensato ed emendato di ongi suo peccatola bestiale compravendita della sinistrama il dato di fatto è che passera come ministro è totalmente incapace e questo è un fatto sicuro

  44. Witam serdecznie,No, no, zdjÄ™cie SERWIS-u jest przebojowe „OdkryÅ‚am” WaszÄ… nowÄ… stronÄ™ poszukujÄ…c w internecie Waszej najnowszej pÅ‚yty.I oto pytanie – gdzież to jÄ… można nabyć w drodze kupna?Czy muszÄ™ jechać aż do KÄ…Å›nej Dolnej?Najlepsze życzenia – Å›piewajcie nam dalej, najpiÄ™kniej jak umiecie.czyli tak jak do tej pory. JesteÅ›cie THE BEST !Uszanowanie,

  45. Hey Gina,I’m an environmental scientist and I always enjoy reading your blog, but when you mentioned putting in a pond w/ waterfall in your backyard I cringed. Please remember that water scarcity is a major problem even in a wealthy country like ours. Enjoy the dessert and conserve water, even if it seems abundant.

  46. I vote for Number 15!!!! She was the last picture….. Like they always say… “Save the best for last”! She is sooooo precious. The flower hat was a lovely touch to bring out her big beautiful eyes! Simply adorable!

  47. This apartment seriously rocks my socks. It makes me want to give my own apartment some more loving.One of the guys from work picked up that neon Tom Dixon stool for super cheap (well…by Tom Dixon standards) because it had the tiniest little scratch. I was supremely jealous. Even more jealous now I see the stool in context.

  48. Het is de eerste keer dat ik op je blog kom, maar WAUW wat een ge-wel-dige blog heb je!! Echt een hele mooie stijl heb je, je ziet er echt leuk uit. Ik ga je zeker volgen. Alleen ik heb een vraagje, welke camera gebruik je? Want de kwaliteit is echt prachtig van de foto's. Ik ben namelijk dringend opzoek naar een mooie camera, maar het is nog aardig lastig zoeken met al die keuzes. X

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