UMCU Dag 24 – Stapje voor stapje…

Op verzoek van Dolf zorg ik, Marjolein, voorlopig voor zijn blog.

Bloedwaardes  

De verwachting is, dat de bloedwaardes redelijk stabiel blijven. Er is vandaag geen bloed afgenomen.  Toen de bloedplaatjes zo laag waren, waren de adertjes in zijn ogen gesprongen. Hij moest uitkijken met druk op zijn hoofd, dus o.a. niet bukken. Daarnaast had hij ook heel veel puntbloedinkjes, iets wat je vaak ziet bij leukemie. De puntbloedinkjes trekken langzaam maar zeker weer weg.

Conditie

De fysiotherapeut is langs geweest om Dolf te laten oefenen met een “steps-bankje”. Deze oefening is bedoeld om kracht op te bouwen in de beenspieren, om weer trap te kunnen lopen.
Het oefenschema is nu: 2 sessies per dag van 14 x op en af het bankje stappen.

Infuus

Medicijnen worden weer in vaste vorm gegeven, dus het infuus is hiervoor niet meer nodig.
Er is weer gestart met de medicijnen voor de myelo fibrose, om de symptomen hiervan te onderdrukken.

Dolf krijgt nog de helft van de benodigde voeding (2500 kcaloriën) via het infuus. De andere helft moet hij zelf door eten en drinken binnen krijgen. Er zijn veel eiwitten nodig in deze situatie. Daarom wordt er “astronauten” voedsel bijgegeven: drankjes met heel veel eiwitten en caloriëen.
Door de myelo fibrose transpireert Dolf heel veel, dus de vochtbalans moet ook goed in de gaten worden gehouden.

De diëtiste heeft vandaag een gesprek met ons gehad: eerst besproken wat Dolf nu eet en hoe we de hoeveelheid moeten opbouwen. Dolf heeft tot nu toe niet veel trek, doordat de bloedsuikerspiegel door de sondevoeding op peil wordt gehouden. Hij moet op vaste momenten (op de klok) gaan eten, ook al heeft hij geen trek. Het hongersignaal moet op deze manier weer terugkomen. Daarnaast zijn adviezen verstrekt om het eten zo eiwitrijk en calorierijk mogelijk te maken.
 
Dolf voelt zich redelijk, in ieder geval geen koorts, wel blijft hij doodop. Het douchen is nog steeds een slopende activiteit.

163 gedachten over “UMCU Dag 24 – Stapje voor stapje…

  1. Ah ? Toi non plus ? Bah, moi non plus. Limite, c'est devenu mon livre de chevet. Je n'y croyais pas au début, je ne me faisais pas à cette police de caractère qui fatigue les yeux, j'en oubliais de regarder les recettes. Et puis il y a eu cette si sympatoche matinée… J'ai appris à lire ce bouquin entre les lignes. Je le trouve incroyablement généreux. Je l'ai même offert.

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  31. He is ridiculed because of A) his rhetorical style [vague, equivocation, red herrings, ignorance – ex. When he disputed Saban’s one-issue even though Saban stated it himself] and B) his persistence in spite of being refuted over and over.What do you know? When do you ever debate here? You’re a suck up, loser. You latch on to those who share your narrow world-view.Pick a topic, or deal w/ the subject matter and engage in sincere discussion. All you ever do is cheer-lead. Pathetic.

  32. Wow, what an utter failure of logic. Even if the numbers were that low, and even if that mattered, it still doesn’t make sense.If only 3 percent (a hopeful estimation of people who carry semi-regularly) of the population wore seatbelts, and thus a miniscule amount of lives were saved by seat belts in car accidents…would you say that seatbelts don’t work, or that more people should wear their bloody seatbelts?I wonder sometimes how the anti mind can function on a daily basis.

  33. I hired a white guy who did that, one time. That’s why I don’t hire white guys anymore!You can’t generalize leadership traits and styles across any career background. E-9′s don’t all manage the same while in the military; I’ve had great Command Sergeant Majors, and lousy ones. Generally, we want to hire managers who are good at managing. Having a military background, even a 30 year career one, doesn’t mean that you’re good at managing, but it also doesn’t automatically disqualify you.

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  40. Mel, FWIW, my mother wasn’t even there. The story would be untold, except Helen joked about me socking people as a four year old. I could analyze that little anecdote on twelve different levels, and it’s only comparable in some ways to the story above. It’s not necessary to be rude to someone’s apathetic mother to encourage conscience in a child. I still say the strategy of demonstrating concern for others is better at developing empathy and making a child feel crummy for having been oblivious to social rules and the feelings of others.

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  47. Hi guys….How’s it goin? Good here, last day of school yesterday so WOOHOO….But Hayden’s not lookin forward to summer for a couple of reasons…I’m sure you know them huh But, we’ll make the best of it~All of us will right?! lol…k well just wanted to say HEY!We sure do miss you! Love you guys~

  48. Agree that the old RTR looks much better than the new one.. dont like d sound of the new one either..sounds like a wimp.. i hve the 2010 rtr n it roars like a lion.. i like it.. TVS looks like didnt had time to do a proper RND before launching the new one… its market gonna crash with the new models now dat NS in on d road…. n Plz Tvs put MRF tyres .. TVS TYRES are waste..The old rtr rules…

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