1. Goed nieuws.
En we beginnen dit bericht met het goede nieuws. Afgelopen maandag weer voor controle geweest. We rijden naar het ziekenhuis en merken dat we ons niet druk meer maken over de bloedwaarden. Het vertrouwen is zover toegenomen door de goede waarden van de afgelopen weken dat we vrijwel zeker weten dat het Hb. voor mijn doen hoog is. En ja hoor, Hb van 8.9! Hoger dan ooit. Net iets boven het minimum van gezonde mannen, maar toch best tevreden. Er zijn nog zeker vele waarden die niet goed zijn (zoals ijzer moet max 250 zijn en is 3300, of nier en lever waarden en bloedplaatjes die te laag zijn), maar die worden pas aangepakt als de bloedproductie stabiel is en de medicijnen afgebouwd.
2. Slecht nieuws.
Voor we naar een controle afspraak gaan, maken we even een lijstje met punten die we willen bespreken. Alweer staan er de 2 zelfde punten op. Het eerste punt is de extreme vermoeidheid en het tweede punt is een uitslag in mijn mond die ik al een paar weken heb.
De vermoeidheid is moeilijk te verklaren. Vaak krijg ik de vraag “wat is dat dan voor vermoeidheid?”. Ja, het is echt moeilijk te beschrijven. Ik denk dat het het meeste lijkt op de vermoeidheid/lamlendigheid die je wel eens hebt op een benauwde zomerdag als het moet gaan onweren. Ik kan momenteel ca 2 uur per dag iets doen. De ochtenden lig ik op bed, de middag een stukje wandelen buiten, naar de winkel of een keer een uurtje naar de stad en daarna weer op bed of de bank. Het is niet anders. Ik ben de laatste maand lid geworden van verschillende (Amerikaanse) Facebook groepen waarin ervaringen van patiënten met leukemie en stamceltransplantatie worden gedeeld. Dat is in ieder geval leerzaam en leert relativeren. Er zijn er genoeg met veel grotere problemen!
In eerste instantie dachten we dat de vermoeidheid door de Neoral zou komen, maar die heb ik al 2 weken geleden gestopt en er is geen verschil. Zelf zijn we bang dat het de vermoeidheid is die je vaak hoort bij patiënten die chemo hebben gehad. Ik heb in 2 maanden immers 2 maal een zware kuur gehad en dat zou best de oorzaak kunnen zijn. Mijn hematoloog besluit om te stoppen met de hydrocortison en weer te starten met 10mg prednison per dag. Hopelijk daardoor wat meer energie.
Uitslag in mijn mond.
Dan punt 2. Mijn mond. Ik heb al een paar weken uitslag in mijn mond. Een paar weken geleden zijn wij hiervoor extra tussendoor naar het ziekenhuis geweest. Toen werd gedacht aan een virus en hebben we de dosis met de anti-virusremmer (valaciclovir) verhoogd van 2 naar 3 per dag. Jammer genoeg is de uitslag hierdoor niet weggegaan. De arts bekijkt mijn mond nogmaals en tot onze schrik komt hij tot de conclusie dat het geen virus is maar Graft. Afstoting van mijn lichaam op de bloedcellen die gemaakt worden uit de donorcellen! Naast de afstoting van mijn huid nu dus ook afstoting in mijn mond. Ik heb al verscheidene malen geschreven dat Graft de grootste en engste complicatie is. Het bepaalt in grote mate hoe de rest van mijn leven er uit gaat zien. We balen natuurlijk van deze conclusie. Hij schrijft een prednisonzalf voor die ik 2 maal daags in mijn mond op de plekken moet aanbrengen.
Vorige week dinsdag een telefoontje gekregen van mijn hematoloog. “Zou je iets voor mij willen doen?” Tuurlijk wil ik dat. Hij heeft zo enorm veel voor mij gedaan. En wat blijkt. Hij heeft voor 40 studenten de theorie van Myelofibrose uitgelegd, maar wil ook een patiënt aan het woord laten. En mijn verhaal is natuurlijk best bijzonder. Eerst de ontdekking van myelofibrose, toen de vleesetende bacterie, de trial, de acute leukemie en de stamceltransplantatie. Samen met Marjolein deze laatste 3 bijzondere jaren uit ons leven met hen bespreken was leuk om te doen. Na een uurtje verlaten we de zaal weer en hopen dat ze nog vaak aan ons terug denken als ze een patiënt met deze zeldzame ziekte in hun praktijk zullen zien.
En nu, een week na de controle?
We hoeven pas over 4 weken terug te komen! Vooral omdat het bloed de laatste weken een stabiel beeld vertoont. Als het niet gaat (vermoeidheid/Graft) kan ik tussendoor mailen of bellen en besluiten we of ik langs moet komen. We zijn nu bijna een week verder na ons bezoek en dat laatste gaat wel gebeuren. De vermoeidheid neemt verder toe, en de Graft neemt ook nog niet af. Nog even aanzien en dan maar een mailtje maken.
Gelukkig zit het in mijn karakter dat als het een beetje gaat, ik dingen ga ondernemen. Momenteel is dat echter heel moeilijk.Ik heb met de fysiotherapeut afgesproken om te kijken of we mijn conditie kunnen verbeteren.
503 gedachten over “Goed nieuws, slecht nieuws”
I thought I’d have to read a book for a dioevscry like this!
How neat! Is it really this simple? You make it look easy.
Thanks for starting the ball rolling with this insight.
If you want to get read, this is how you should write.
PS: wie auch das mit der Schleimfalle das hat mir auch net so gefallen nagut das mit den jau war lustig aber ich hÃ¤tte es lieber mit beschleunigung gesehen… ^^
Ikhlas perlu dilatih juga y pak Ustadz.saya juga pernah baca hadist diatas, di buku karangan Maulana Zakariyah tadz, benar2 buku/kitab yg luar biasa.———Iya, Mas, perlu latihan dalam ikhlas ini. Wah, jadi pengen membaca kita tersebut. Makasih banyak ya, Mas.
I shared this on my facebook wall and this comment was made “I would be happy to commit my life solely to passing on this piece of wisdom” – thanks to you for your powerful and heartfelt words. Blessings to you x
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I'm like you, I have been putting off making the full switch. I have replaced the ones that have burned out, but maybe I should just toss the ones that are still good and change them out anyway. I like the idea of saving energy and money! And bravo for getting some bulbs for the children's shelter!
Thank you so much for this article, it saved me time!
Ci indignamo se fanno rispettare le norme?Piuttosto vigiliamo che le facciano risparmiare a tutti. E' come se vi multassere per non aver indossato la cintura di sicurezza e lamentarsi che tutto il paese non la usa. 0 Mi piace
That hits the target perfectly. Thanks!
And I was just wondering about that too!
Thanks for sharing. What a pleasure to read!
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Gee willikers, that’s such a great post!
patty,“Dreams are like stars … you may never touch them, but if you follow them they will lead you to your destiny.” Wishing you peace and a new life filled with happiness,Libby
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It’s good to get a fresh way of looking at it.
The genius store called, they’re running out of you.
dit :Bonjour Bernard, Oui effectivement la justesse vocale est gÃ©nÃ©ralement un problÃ¨me d’oreille. Une astuce pour travailler cela : il te suffit de penser le son intÃ©rieurement en imaginant le son de ta voix avant de le chanter rÃ©ellement et ce pour chaque morceau de mÃ©lodie au dÃ©part. C’est un travail un peu fastidieux au dÃ©but, mais trÃ¨s efficace… Enfin la question reste tout de mÃªme celle-ci : as-tu rÃ©ellement envie de chanter ? En mÃªme temps la peinture, c’est pas mal non plus Bonne soirÃ©e Bernard
Nou je mams lijkt absoluut geen 80 hoor als je zegt dat ze 60 wordt geloof ik je ook.Feliciteer haar maar van me.En niet alleen je moeder ziet er goed uit maar die wasbak met daarboven die heerlijke nostalgische tegeltjes vind ik ook geweldig!!Is dat bij jou thuis.Samen met je fornuis maakt het een heel sfeervol en gezellig geheel!!liefs van Petra
David,It is entirely possible that I wouldn't believe even if the evidence were much better than it is. However, I don't think that this possibility justifies believing based on evidence that is weak.
I never realized you had so much contact with Karla Turner. I used to think of here as a paranoiac. This discussion makes me reconsider that she may really have been the victim of strange goings-on. Also, that high-pitched sound Richard mentions wasn’t in her imagination.
You are correct of course but this test is for all the people who think they will make it into Heaven on a scale of “goodness”. The test just illustrates what would qualify a person as being good enough in Gods eyes to get into Heaven according to His standard. You must be perfect in thoughts, words and deeds from birth to death with zero flaws. It is an impossible standard to meet on a scale of “goodness” and that is the whole point. Without Jesus, there is NO HOPE for salvation at all for any human.
HI Julie,I have eaten sauerkraut from the very beginning and it has been my main source of fermented foods. I was eating yogurt but then found it wasn’t working for me any longer and then I did the intro diet. This past winter, I started eating raw dairy and now I can have raw yogurt and a bit of heated yogurt. I have also taken probiotics daily since day one. I would actually like to be doing more, but this is what I have been doing. Hope this helps!
I just have to say Nate shouldn't added twilight in there and I can understand True Blood, Twilight just put Vampires to shame. So using Twilight as an example is pretty much an insult to any vampire series, not just Bram Stoker. So they could of added another example instead of a bad example, that reminds someone of a walking disco ball.
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Good to see a talent at work. I can’t match that.
Kudos, Jerry !!!Mike Francesa = “talk-radio bloviator” … Spot on, Mate !!! Mike is all about Mike and more than sometimes he’s as out in left field as Billy Packer was … the difference is that CBS got smart where NBC and YES have not !!!I annually take particular umbrage with Francesa when his talk show devotes only a modicum of time to March Madness … even when there are local teams playing !!! Right on, Mate !!!
Finding this post solves a problem for me. Thanks!
This is the first time I’ve ever heard of a vertical marathon, but it definitely sounds interesting and intense. I wish you best of luck in your success!Michelle Pegram recently posted..
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06/05/2011 – 8:56amPara mÃ ha sido una pÃ©rdida de tiempo leerlo, a lo que me refiero con el ejemplo del Mundial de Corea y JapÃ³n es que los casos que pone son demasiado triviales, que no hace falta que nadie nos diga nada y menos Ã©l. Y como digo, no creo que Villar quisiera perjudicar a su paÃs.Por lo demÃ¡s, una decepciÃ³n en cuanto al periodismo. Lo que se le ponÃa a tiro como una gran labor de investigaciÃ³n, de reuniÃ³n de datos y pruebas, de todo, lo ha convertido en una tonterÃa como una casa.
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This is a neat summary. Thanks for sharing!
It’s always a relief when someone with obvious expertise answers. Thanks!
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This article keeps it real, no doubt.
Surprisingly well-written and informative for a free online article.
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Great article, thank you again for writing.
Okay I’m convinced. Let’s put it to action.
Always the best content from these prodigious writers.
Very much hoped that tasting the finals again would stir something within him. Guess he’s for real.I still think he’ll come around, though it may take a few months. It’s kind of like imagining him dying suddenly without a diagnosis. It doesn’t quite compute.
Keep these articles coming as they’ve opened many new doors for me.
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, I’m skeptical. It sounds too much to me like the old idea that students should be forced to learn Latin because the mental discipline involved would somehow magically make them smarter. (But, I still think learning Latin is a good idea…)
Very valid, pithy, succinct, and on point. WD.
If you like fantasy novels, I’d recommend anything by Laura Anne Gilman (and not just because we’ve been really good friends since I was 13 — I really love her writing!).
I thank you humbly for sharing your wisdom JJWY
annegb – I used to be very superstitous like that. Finally, I became tired of worrying about what Satan was doing and decided that I would just forget about him and focus on God. It seems to have helped a lot.
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Ya learn something new everyday. It’s true I guess!
What a great place that rec center looks like! I am sure that they appreciate your donation. Oh, and your family is beautiful! Love the pic from the daddy/daughter dance!
ooo.elsker fargen. har aldri visst hva den het. har noen sko i den fargen og eeeelsker dem. desverre er de blitt slitt. sukk. kjenner jeg mÃ¥ pÃ¥ tangerinejakt.
Ahoi Harry,vielen Dank, bis jetzt ist alles gut gegangen, vom mangelnden Schlaf mal abgesehen. Eben bin ich aber, beim Versuch zur Dusche zu gelangen, um ein Haar vom Steg ins Wasser geweht worden. Aber ob Dusche oder Bad ist ja eigentlich auch egal, oder?Liebe GrÃ¼ÃŸe,Lutz
This insight’s just the way to kick life into this debate.
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Jeg elsker sorte detaljer jeg ogsÃ¥, og setter stor pris pÃ¥ at du delte denne inspirasjons paletten 🙂 Ekstra stas Ã¥ bli vist frem i sÃ¥nne sammenhenger, sÃ¥ jeg skjÃ¸nner godt at du syns dette var stas! 🙂 Printen er kjempesjarmende og den dagen jeg fÃ¥r mitt nye bad, tenker jeg at det ville vÃ¦re perfekt til vegg-dekor 🙂
First time visitor. Two comments:It would be nice if you could split your posts over multiple smaller ones. Its easier to read that way.Secondly, a bigger font size would be appreciated. I think I’d need glasses to read the small print 🙂
Which came first, the problem or the solution? Luckily it doesn’t matter.
Keathley is great. The class atmosphere was really relaxed and discussion based making it totally stress free. He started the semester by doing reading quizzes frequently but those stopped 3 or 4 weeks in. The books that you read won’t be typical LIT books and are a great change of pace from those that you might analyze elsewhere. I came into this class with no prior experience with studying film and did fine so if you are thinking about taking it I 100% recommend it.
wow, i could never have seen my mil wear those babies! congrats on the 100. sweet little giveaway. sounds like it was very nice having the folks over. the quilt looks really sweet, do you have a pic of the whole shebang?smooches
Yo, that’s what’s up truthfully.
This does look promising. I’ll keep coming back for more.
That’s cleared my thoughts. Thanks for contributing.
When prepping becomes compulsive it can mean there are mental issues involved. Also might be a paranoia issue. Not saying that this is the case here, but I wouldn’t be surprised.
4. Our children always used to make Christmas cards and birthday cards for us. So why not Thanksgiving cards? Here’s an easy little craft that produces awesome results. Don’t be surprised if your children want to do this one again and again after they try WAX PAINTING THANKSGIVING CARDS.
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Thanks Katy. that song ref. I was going to make it a TiTWeSo, but I think folks’ll’ve grown tired of country songs with references to boats and travel. It’s a great song though. Nice key change into the chorus.Corsairs – Just reminded me ofÃ‚Â pelicans. Stumpy and close formation, ?Ã‚Â
I’m quite pleased with the information in this one. TY!
We’ve arrived at the end of the line and I have what I need!
That’s a knowing answer to a difficult question
A minute saved is a minute earned, and this saved hours!
I much prefer informative articles like this to that high brow literature.
I’ve actually seen both of these movies (for once). I loved the original Psycho. Anthony Perkins was so very good, and the black and white gave it such a haunting feel. As you mentioned, the cast of the remake was very good, but what bothered me is that they simply remade it. I mean, if you’re going to be bold enough to remake a classic, then why not REMAKE it? Bring it into the era while still keeping the same bone-chilling suspense. But maybe I asked for too much.And completely agree about Viggo’s naked behind. Glorious.
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This is both street smart and intelligent.
That’s a slick answer to a challenging question
, “Are you going to just read that book and not talk to me?” And I said, “Yes.”Even though I thought it was total bullshit, I couldn’t put it down. That wasn’t the same with the Left Behind series. I’m willing to set aside my personal religious beliefs if it’s a good story, but those books were a steaming pile of bad religion AND bad writing. I didn’t even make it past the first chapter of the first book before I threw it away.
zeker, daar werd ik blij van Wie weet hoe scherp haar tandjes zijn van zij die zich vrijelijk van tene naar tandere scherm begeeft .
In the complicated world we live in, it’s good to find simple solutions.
J’ai besoin de soulager mes jambes lourdes car je suis sans arrÃªt en train de courir aprÃ¨s mes bus et mon mÃ©tier m’impose de porter des talons!! Du coup, en fin de journÃ©e, j’ai du mal a tenir debout et mes jambes me tiraille mÃªme aprÃ¨s la douche et pendant la nuit!! Help!
I didn’t know where to find this info then kaboom it was here.
I love this definition of management, Derek. And the story about the calculator ought to be nominated for some sort of cheap company hall of fame, although if that was back before everyone had a calculator on their iPhone it might have been considered expensive office equipment.
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There are no words to describe how bodacious this is.
Sure, to you, with a skeptical mindset. The percentage of Americans that believe in ghosts ranges from 20-50% depending on the poll. That’s a significant portion of the population that eats this stuff up as it’s fed to them. Uncritically.
And I was just wondering about that too!
Kas mierÄ«ga, laimÄ«gs daÄ¼a. Vai viÅ†Å¡ joprojÄm ir tas jauks cilvÄ“ks? Es esmu no “Ätri uz priekÅ¡u” lapas un ar nepacietÄ«bu gaida lasÄ«t vairÄk. Es esmu patieÅ¡Äm patika Å¡is stÄsts. Keep up lielo rakstÄ«Å¡anas!Tara nesen ievietojis..
Shoot, so that’s that one supposes.
Mal sehen, wie die Preise aussehen, wenn man “GroÃŸabnehmer” & Selbstabholer ist. Man kÃ¶nnte ja theoretisch auch bei Brodowin (in grÃ¶ÃŸeren Mengen) bestellen und es dann selbst untereinander verteilen (als so eine Art Sammelbesteller). Aber auf jeden Fall werde ich die Preise auf den beiden o.g. HÃ¶fen mit den Brodowin-Preisen vergleichen.
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I couldn’t agree more about fall/winter in Seattle. Blech. We are having the same problem with our chickens, molting and eggless. I need to put up a light too and maybe modify their diet – more protein and maybe calcium? I haven’t had a single egg in 2 weeks. Been thinking about chicken soup…
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Brilliance for free; your parents must be a sweetheart and a certified genius.
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Wow, so many things violated there! Thank goodness she didn’t walk out of the shower to find them there. I would have started found something and started swining!
There are no words to describe how bodacious this is.
you actually give a fuck and read all of this,then thank you.I work my ass off 2 make it in the music biz, but its impossible 2 make it ifnoone ever hears you, and its hard to get people to hear you when youï»¿ haveno exposure.
It doesn't take Nobama's Harvard Law degree to count to 47. Nobama realizes that it takes 67 votes in the Senate to remove him from office and there are only 47 Republicans. He knows that there aren't 20 'Rat Senators who would throw him under the bus.
I told my kids we’d play after I found what I needed. Damnit.
AKAIK you’ve got the answer in one!
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W naszym budynku mamy zainstalowanÃ„Â… sieÃ„Â‡ kablowÃ„Â…, w której dostawcÃ„Â… usÃ…Â‚ug internetowych jest „chello”. ChoÃ„Â‡ chciaÃ…Â‚bym mieÃ„Â‡ poÃ…Â‚Ã„Â…czenie internetowe pod linuksem to nie jestem w stanie. MogÃ„Â™ mieÃ„Â‡ poÃ…Â‚Ã„Â…czenie tylko pod systemem Windows.
Woot, I will certainly put this to good use!
Yo tambiÃ©n me he quedado perplejo esta maÃ±ana al oÃr la noticia. No entiendo como algo asÃ puede suceder. se han dado un cÃºmulo de circunstancias que aunque no sean habituales dejan muy mal el estilo de vida que llevamos.
Las lentejuelas me chiflan asi que rescatare del armario del olvido un vestido, una falda y una chaqueta:)Pero son prendas que hay q combinar con cuidado para no terminar pareciendo un arbol de navidad!Buen dia!Tifany
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That’s a smart way of thinking about it.
Great story, dude. Hilarious and tense. Your best post yet. I could feel the wind and heat, smell the manure, hear Jack saying, “Daddy, is this Disneyland.”
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I was also asked, by one of the two dark-haired girls that I had a crush on, this one a doctor’s daughter, “Why don’t we just sell it?” Even fourth graders can be left speechless.Probably the most intelligent question ever posed in the New York Times and it comes from a fourth grader! It later occurred to me that I should have answered: “You can’t just sell it. It’s not your beach house!” It's not a beach house. It's more like a timeshare. You can't sell it, because it costs more to maintain than it's worth. You can't even give it away.
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Wham bam thank you, ma’am, my questions are answered!
– 11:53 Chiar discutam ieri cu entertrainerul Gorgan despre poveÈ™tile (sau mai bine zis, lipsa acestora) din spatele unor persoane notorii Ã®n social media din Arad. Trist, dar adevÄƒrat. Publicul e tot timpul natang? Btw, citatul lui David Ogilvy cred cÄƒ are o greÈ™ealÄƒ (less important?)
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ciao Michela,questo video Ã¨ un contributo speciale! per me che spesso procedo come un gambero, trovare spunti per andare sempre e comunque avanti Ã¨ importante. Buy green, buy local! ci si vede il 14.12. Roby
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Yup and to your point on the lesser known players…just read where UF lost Patton for the year and that was not even mentioned during the game or in any of the post game talk. I knew he had been injured but this is the first Ive heard about the severity because the morons at ESPN are more concerned with sports entertainment than sports news.
How Jack Morris isn’t in the Hall of Fame amazes me. A guy like Schilling, whose regular-season record, at best, makes him a borderline Hall of Famer is considered a lock by a lot of people because of his postseason record. Based on the 1984 and 1991 postseasons alone, Morris should get in.
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– Merci. Cum zice "wine and knives" mai jos, nu este greu de facut. Merita sa incerci @wine and knives – Intr-o zi o sa incerc sa o fac acasa sa vad cum se compara cu asta cumparata@Diana – Merci 🙂 @Emily – Merci@pansy – Adevarat :)@Any – :)@Simona – Merci@Mihai – Fac si eu ce pot 🙂
… This thread is proof positive why a centrally directed economy will never bring anything but economic destruction. Lets see, engineers should be paid more and investment bankers should be paid less. Perhaps good allocation of capital is a difficult undertaking, requiring rare skils and yielding great value?"Investment bankers are certainly good at allocating capital to themselves.May you someday find yourself in an airplane, elevator, or on a bridge designed by a company that, on the advice of the highest priced financial consultants, hired the lowest priced engineers.
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draga Avi,multumim pentru martuaia ta.Nu vreau sa par a da solutii simpliste, ÅŸi totuÅŸi este ceva ce poÅ£i face pentru copilul tÄƒu: post ÅŸi rugÄƒciune.Repet ce am mai spus: roagÄƒ-te ÅŸi cred cÄƒ se vor gÄƒsi cÃ®Å£iva pe aici pe-aproape sÄƒ se roage cu tine.
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But imagine if you added some great images or videos to
give your posts more, “pop”! Your content is excellent but with pics and clips, this site could certainly be one of the greatest
in its field. Great blog!
You are one talented writer thank you for the post.
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