Moe, Botontkalking/necrose?

Moe….
Zo vlak voor Koningsdag even bijschrijven. De griep is gelukkig niet terug gekomen en ik heb het zoals is gezegd, heel rustig aan gedaan. Kon ook niet anders. Omdat de vermoeidheid verder is toegenomen, ben ik naar de huisarts gegaan. Dit kan zo niet verder. Ben nog 1-2 uurtjes per dag actief, de rest van de tijd lig ik op de bank of op bed. Best wel deprimerend voor zowel mijn omgeving als mijzelf. De huisarts heeft gekeken naar de medicijnen die ik gebruik, de bijwerkingen en mogelijke organen die hierdoor aangetast kunnen worden. Daar komt bij dat ik ook vocht heb bij mijn enkels. Ze denkt aan hartfalen en ze wil een hartfilmpje (ECG) laten maken. Dat is vorige week bij de opname in het ziekenhuis ook al gedaan en die uitslag was goed. Daarom besluiten we om eerst bloed te laten prikken waarbij er breed gekeken wordt naar mogelijke problemen. Een paar dagen later ben ik terug voor de uitslag en wat blijkt? Zwaar vitamine D tekort (25 nMol/liter, moet 80-250 zijn). Dit kan zeker de oorzaak van de vermoeidheid zijn. Bijna blij verlaat ik de spreekkamer. Ik had nooit het idee dat er iets ergs aan de hand was, maar wel dat er iets aan de hand was. Dit MOET de oplossing zijn naar een iets normaler leven. 
We halen gelijk de pillen (800 I.E. Vitamine D en 500 mg calcium) op. Naar verwachting moet ik met 1-2 weken verschil gaan merken. Inmiddels slik ik bijna 1 week deze pillen, maar nog steeds geen verschil te merken, sterker nog, het gaat nog slechter. Geduld wordt nog even op de proef gesteld.



Botontkalking/necrose.
Ik ben niet zo’n piekeraar en maak me niet snel zorgen. Toch ben ik erg benieuwd naar de uitslag van de meting van mijn botdichtheid die op 12 mei gedaan wordt. Ik slik tegen de afstoting sinds oktober vorig jaar een behoorlijke hoeveelheid prednison. Daar komt nu het vitamine D tekort bij. (vermoedelijke oorzaak tekort aan zonlicht, niet zo raar als je zo’n 1,5 jaar bijna niet meer buiten bent geweest). Beide zorgen voor botontkalking en botnecrose. Vele lotgenoten (uit onderzoek blijkt 25% van de patiënten met afstotingsverschijnselen die dus prednison gebruiken) hebben al een heup of knie moeten laten vervangen. We zien het wel. In ieder geval zal ik in de gesprekken die we ook op 12 mei hebben, wel aankaarten dat in mijn ogen het testen op vitamine D tekort een onderdeel zou moeten zijn van het stamceltransplantatie protocol indien er afstoting plaats vindt. De meeste patiënten zullen zeker in de eerste jaren na transplantatie minder buiten komen en zich in moeten insmeren met faktor 30-50 waardoor de aanmaak van vitamine D sterk zal afnemen.

Leuk!
Deze week toch nog wel wat leuke dingen gedaan hoor! Woensdag met mijn ouders (84 en 88) en Marjolein met de auto de bloesemroute gereden, donderdag een half uurtje voor de training bij mijn voetbalvrienden bijgekletst en op vrijdag krap een uurtje bij een competitiewedstrijd van mijn tennisteam gekeken. Fijn dat ik dit toch kan doen! Tja, ik ga dan wel met de auto naar de tennis en de voetbal, maar toch, ik kan het wel en geniet er zeker van.

Gelukkig kijk ik altijd naar wat ik nog wel kan en niet naar wat ik niet kan. Vanavond is er wel iets dat we moeten missen. Met koningsnacht speelt er in Woerden in het Bierhuys een liveband waar we regelmatig naar toe zijn gegaan. Jammer dan. Vorig jaar was ik net thuis uit het ziekenhuis na de leukemie behandeling en dit jaar slaan we ook nog maar even over. Volgend jaar beter……


Prettige Koningsdag allemaal!

516 gedachten over “Moe, Botontkalking/necrose?

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  18. Hi Dave, Thank you for explaining the thought process on raising the volume levels for worship. I prefer clapping & raising hands when I worship. I have been slowly adjusting. Much of the new music is not conducive to clapping hands I think you may be painting “all outsiders ” into fans of edgy ear splitting rock music. Perhaps I’m missing the actual target demographic that LCBC is aiming for. I assumed it was anyone unsaved. Any chance of mixing in a Darrell Evans type song (yes lord, yes lord, yes yes lord) comes to mind?

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  33. Il manque quand même un lien hypertexte autour de « désormais, plus personne ne s’en aperçoive », je pense que l’allusion à la tirade de Sarkozy sur les grèves (et je ne doute pas que c’en est une) est passée à l’as pour beaucoup… Merci de ce beau dessin comme d’habitude.

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  43. Wendy, I know it sounds trite, but you just need to be yourself. Flirting is fun. But it's not the real thing. So just be you. Try this, pretend you like her but don't find her attractive. What would you do? Then do that. If you just met someone you want to hang out with but didn't "like" how would you behave? Don't let the "cute" in this person mess anything up. Ya know? Of course it is almost 1:30 here so I am surely spouting drivel… Night all.

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  47. no no yourself. None of those is a motion to dismiss. There has never been a motion to dismiss filed in this case. Give it up, layperson. You made a statement that is wrong. Better to admit it than to keep digging a hole.Here is why you cannot find any motion to dismiss: an Answer was filed. If a defendant moves for dismissal he does NOT file an answer.Anyway, this case is about to be decided on the merits. Brace yourself for the loss.

  48. ok u dont need to be emo to like skinny jeans and u dont have to be gay to either. i am emo and i do like skinnys. but my sister isnt and she likes them too same with my boyfriend and he isnt gay. the only people who shouldnt wear them are people who arent skinny it just doesnt look right. but hey dont judge people on if they r gay or emo or anything just by their clothes. and i am an emo who does cut herslef so if u write a comment to respond to mine watch what u write. trust me dont mess with me

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  53. I read the comments & reviews so hopefully this isn’t a repeat question. But will the 210 display last lap splits? I mean during a run and not post run using software. Say I go for a 5 mile run and at it beeps to mark off miles as I have it set at. When it beeps at mile 2 is there any way for me to see that last mile split displayed? Would be a deal breaker otherwise. Last lap splits are as important as current pace in my book since one is just a continuation of teh other. Any answer to this would be appreciated.

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  55. Caro walter2011, non capisco i tuoi commenti inutili, se Signorini non ti é simpatico non vedo perchè devi parlarne, va be che si dice “sia che se ne parli bene, sia che se ne parli male, l’mportante é che se ne parli”, per carità ognuno ha diritto di esprimere il proprio parere ma a volte si fa più bella figura a stare zitti. Lui è un personaggio pubblico ed è suo dovere verso chi lo segue di dover spiegare il perchè della sua assenza. Un abbraccio ad Alfonso

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  65. great review, i love the way you take the essence of what you read..Have you read My sister and I?? I read it long back and somehow couldn't finish of because of his philosophy and critical meaning to things that I couldn't pick up then, I guess I should dig it and read it…

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  67. Så sant, så sant. Greit å stoppe opp litt en gang i blandt å huske på sånne sitater! Granitt har masse tøft! Ha en flott kveld.

  68. Katie, you are doing a great job of keeping us informed and thank you for that. You know many many people are holding you all up in prayer throughout the day. Hugs all around, we love you all! I hope the website updates keep the phone calls to you guy at a minimum. I will be checking the website for updates.Love Ellie

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