Deze maand is het 4 jaar geleden dat ik naar de huisarts ben gegaan omdat ik me niet lekker voelde. Toen begon het. Eerst een routine longonderzoek waar niets uit kwam en dan een standaard bloedonderzoek waarvan de uitslag ons hele leven ondersteboven heeft gegooid.
Om meer van mijn ziekte te weten te komen ben ik direct lid geworden van de MPN stichting ( Myelofibrose is een van de drie ziekten die samen de MPN ziekten vormen. Drie maal per jaar komt er voor de meer dan 1000 leden een blad uit met daarin allerlei wetenswaardigheden en interviews met patiënten. Voor het augustus nummer 2015 zijn Marjolein en ik geïnterviewd. Zelfs als je het zo achter elkaar leest is het haast ongeloofwaardig wat we allemaal hebben meegemaakt, maar het is toch echt zo, zoals trouwe lezers van dit blog kunnen beamen. Omdat dit blog ook veel gelezen wordt door mede MF patiënten wil ik de kop op pagina 2 benadrukken. Dit verhaal hoeft niet iedere MF patiënt te overkomen. We hebben gewoon pech gehad, en natuurlijk ook heel veel geluk dat ik alle complicaties heb overleefd.

Hieronder is het interview te lezen:

2.970 gedachten over “Samenvatting/interview

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  5. Hi Nicola!After teaching spin classes for several years, I started getting back onto the road again now my kids are older. It’s great to see a blog about women and cycling. Next ride is the Brisbane to Gold Coast 100k.CheersLiz N

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  21. Exactly (well minus any earnings that you might have gained).This is why I sometimes refer to my Roth IRA as my .I need to start contributing the full amount. It seems like I’m always a little tight on cash, but I hate not putting money in it…

  22. Appena ho iniziato a leggere il post credevo che stessi parlando anche tu di Steve Jobs…Invece devo dirti grazie! Anna Lisa la seguivo anche io da parecchio, e fa davvero piacere che abbia lasciato così tanto a così tante persone. E' un po' come darle una "seconda vita".Grazie.

  23. Hola, Ana. No estoy muy bien qué Ana eres, pero sí, claro que lo puedes compartir. Para eso está. (Sobre todo porque Lola me ha dado su visto bueno… 😉 ).Ya me pondrás un mail para decirme quien eres.Beso, mientras.

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  28. 15:06, 18″ box and 20# snatches.The scaling on this was tough to judge. In retrospect, I should have used the 24″ box but scaled the reps in half (18″ was just way too short and putting plates on the box scares me), and the 20# was too light for snatches but 25# too heavy… too bad there’s not a 22# dumbell or something like that. DUs were nice, though, got 41 consecutive during the first 50 which is a new PR.

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  31. Father Z – I suspect that when Cardinal Levada approved the August Assembly, he was just giving them a whole lot of rope to see what they would do with it. I don’t think he needed this so much for himself; rather, he needed documented, public proof that they were not interested in making changes, and he got it.

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  34. Blunt:> Reservations given to SC/ST/OBC (non-muslim), are a price to keep them under the umbrella as “Hindus”… i.e. to keep them away from converting to Islam / Christianity.Indeed. It was a wily Brahmin who fought for this treacherous scheme in our constituent assembly. The cunning Hindu politicians kept the scheme going only to swell the numbers of Hindus in the country.Not that there’s anything wrong with Hindus protecting their Dharma in their country, though.

  35. Pani radna, tu nie chodzi o koszty, tu nie chodzi o sens potrzeby kina. Dzisiaj nikt nie chodzi do kina. Dzisiaj każdy ma kino domowe. Tu chodzi o zwykÅ‚Ä… w Å›wiecie demagogiÄ™ “nie chcÄ… prawie 3 milionów”. Nikogo nie interesuje, że konsekwencjÄ… decyzji radnych bÄ™dzie wzrost podatków. Tych co dzisiaj podpisujÄ… listy ten problem dotknie jutro i wtedy otrzeźwiejÄ…. Ci , co podpisujÄ… list jutro bÄ™dzie protestować przeciwko wzrostowi cen wody i podatków. To jest demagogia uprawiana wtylu kÄ™trzyna 2000 i ich lidera, którego czas mija.

  36. Holli – I had a similar experience. I stopped to do some shopping at Costco and the Blendtec rep was there. He made a green “ice cream” that I was sure (and I’m an IIN Holistic Health Coach, open to trying unusually created concoctions) I’d find revolting – yet, the opposite happened. It was so delicious! I’m glad to find your recipe and will definitely give it a try! Thanks for sharing. Love your site!

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  40. Анонимный мыслитель / привет я та, над которой издевались и не поверите, я жива и здравствую. А этим людям хочу сказать, что нужно свой негатив к людям в позитив и доброту превращать. Это пока вы молодые вас это радует, а вы поймите, что когда — нибудь вы станете героями криминальной сводки

  41. Thanks, Deb. I started with “butt-kickin’ until I remembered birds don’t really have butts. I know the picture you’re talking about on wikipedia as that’s where I went to make sure I had the spelling right.Glad you enjoyed the pair. I’ll probably take on the snowy egret next week.

  42. 1e9d قال:مشكلة البقعه الصفراء هي مشكله في سرعة التصنيع يوجد ماده معينه من الغراء يجب ان تبقى مده معينه حتى تتبخر ولكن مع سرعه التصنيع لا تتبخر بالشكل الكامل يوجد من يقو انها مسالة وقت و تذهب البقعه عن الشاشه ان شاء الله انا امتلك الجهاز و انتظر مع الوقت لاتخلص من ازعاجها

  43. > Morale della favola: non usate i giornali generalisti per informarvi sull'astronomia. È uno spreco di tempo. L'ho detto mille volte (mille si fa per dire, saranno 40 o 50) ma lo ripeto: possibile che un quotidiano come il Corriere (che ha una diffusione di quasi mezzo milione di copie) non si possa permettere un collaboratore esperto in Scienza?

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  47. Les francs-maçons d’aujourd’hui sont des bourgeois mafieux qui se vantent d’être à l’origine d’un du plus grand génocide ethnique pendant la Révolution. Qu’avons-nous gagner en 222 ans de plus que l’Angleterre, l’Espagne, la Norvège, la Suède, etc ? Ce qu’une loi a faite, une autre l’a défait. Or il y eut 40 rois qui en mille ans firent la France. Vive le Roy.

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  49. impartially, and the impact the land grabs are having on peace prospects. I am a firm advocate of Israels right to exist, but that does not mean I am blind to injustice, or the effect that injustice has on negotiations.Dualism tries to frame everything in us-them terms. If you are for Israel, then nothing that THEY say is true. You can’t listen, and must not negotiate with THEM. That kind of thinking has gotten us in this mess.

  50. dit :Moi je suis très infidèle: une bouteille finie = une nouvelle bouteille à acheter et découvrir!Mon dernier coup de coeur: Miracle Forever, de Lancôme… Sinon mon favori c’est Allien de Thierry Mugler, et cet été pour un parfum plus léger je portais Light Blue, de D&G…

  51. Alamme tosiaan olla siinä vaiheessa, että nettiyhteyksien toimivuuden tulisi olla rinnastettavissa puhelinyhteyksiin. Jos opetetaan ihmisiä siihen, että kaikki asiat pitää itse selvittää netistä, yhteyksien on yksinkertaisesti toimittava. Tietoyhteiskunnasta ei kannattaisi puhua, jos verkkoyhteyksiin suhtaudutaan kuin jonakin ylimääräisenä, jota voidaan pitää tuntitolkulla pysähdyksissä.

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  53. Mielenkiintoinen artikkeli, veliseni. Mistä saat kaikki ideat? Ihmettelen suuresti. Pidän eniten ehkä tuosta mansikkapysäkistä. Ja siitä missä on keinu. Sellaiset Lapualle! Tosin kauan ei kestäisi, ennen kuin ne olisi rikottu…

  54. Det handlar om att inse att vi lever i ett land där människor med psykiska störningar lever helt fritt i samhället och kan vilken minut som helst löpa amok. Regeringen borde ängna mer resurser att få bukt på dessa problem i första hand. Det går före skattesänkningar och besparingar på vården.

  55. I think it’s absolutely fine to ignore those over 49.Until January next year, when strangely I might think differently…. the inexorable march of time eh?But at least by then Utd will have been champions for the 20th time

  56. I hope to try this soon, thnx! I have a hair mask i recently bought from, Pro Naturals Moroccan Argan Oil Hair Mask, it has worked really well so far, so just putting it out there!

  57. I'm an ardent supporter of he Weight Watchers program- coming up to my 1 year anniversary and having lost 40 #'s (almost there!) My problem is that the same companies that produce the processed junk also produce the WW products, many of them very high in sodium and loaded with artificial non-food. I'm glad that WW is giving back, but I still have a hard time swallowing the product line. Literally. On a nicer note- love reading your blog. Thanks for putting yourself out there.

  58. Davvero la gravidanza fa cambiare così tanto i gusti, stella? Che cosa affascinante.. peccato che non potrò mai provare quest'ebbrezza 🙂 Evvabbè.. Tesoro mi stupisci sempre perchè sai rendere i piatti così eleganti, raffinati.. anche nell'accostamento dei sapori! Una meraviglia! I miei complimenti! 🙂

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  60. Hatha yoga is the most common form of yoga practiced today.  It focuses on meditation and physical posturing, while incorporating deep breathing techniques.  It is a gentle, calm, form of yoga, completely different from more active forms of yoga, like Bikram yoga, Vinyasa, or Ashtanga yoga.  Hatha yoga exemplifies what a lot of people immediately visualize when someone says “yoga”- restful, meditative, and easy-going.Â

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