Controle, goed nieuws!

Controle.
Natuurlijk zijn we bij de controle ontzettend benieuwd wat de ferritine waarde is. Hij moet omlaag want dat kan de oorzaak zijn van de vermoeidheids- en leverproblemen. Gelukkig was hij vorige keer gezakt van 5000 naar 3300. Nog wel een weg te gaan tot de normaal waarde van 25-50, maar als de weg omlaag maar door blijft gaan, komen we er wel. Bij de 2 wekelijkse controle blijkt helaas dat de ferritine is gestegen van 3308 naar 4032. Komt het ijzer dan toch nog meer los uit de organen? Het doel van 25-50 lijkt weer zo ver weg. Hier alle waarden van de afgelopen maanden, waaraan je kunt zien dat er geen enkel verband in zit : begin 4216, 3581,4437, 4437, 4046, 3994, 5066, 3308, 4032 (afgelopen keer). En dan tussendoor al een liter of 6 bloed af laten tappen. Toch wil de hematoloog dat we vol blijven houden met aderlaten en we besluiten om ieder 2 weken te gaan aderlaten. Dat gaat zo wel zeker nog een jaar duren.

Goed nieuws!


De Neoral heb ik voor de 4e maal afgebouwd! Een half jaar ben ik bezig geweest met afbouwen en nu is het zover. Er breekt weer een hele spannende tijd aan want steeds na het stoppen met de Neoral ontstond er weer nieuwe afstoting. De komende weken zijn we extra alert op afwijkingen aan huid en ogen. Omdat de Neoral is gestopt, kan ik ook stoppen met de Valaciclovir (virusremmer), de Co-trimoxazol (bacterieremmer) en de maagbeschermer Pantoprazol. Scheelt weer 4 pillen per dag. En, nog leuker, ik mag stoppen met het dieet, en mag weer alles eten. Afhaal eten, eten in een restaurant, voorgesneden groenten, franse kaas, carpaccio. Allemaal lekkere dingen die ivm de lage weerstand niet mochten. We maken er gelijk gebruik van en gaan een keertje lekker uit eten. Je moet niet uitstellen wat vandaag kan 🙂

Longfunctie.
De longfunctie is opnieuw getest, vermoeidheid kan immers ook komen door verminderde longfunctie. Gelukkig is de longfunctie niet verder achteruit gegaan en hetzelfde als in mei. Ik ben met de IC opname en beademing vorig jaar 25% longcapaciteit kwijt geraakt. Niet leuk, maar het kan niet de vermoeidheid verklaren, en er is mee te leven.

Hematoloog.
De hematoloog sluit ons bezoek af met de opmerking dat hij zich realiseert dat ik me nog steeds niet lekker voel en dat hij doorgaat met puzzelen en zoeken. “Opgeven is geen optie”. Voorlopig blijven we iedere 2 weken een halve liter aderlaten.


1.995 gedachten over “Controle, goed nieuws!

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  45. Christine, you’re reading it incorrectly. It isn’t forcing dietary practices on everyone else, it’s YOUR ability to keep kosher or hallal at a party where the food, bbq, utensils, etc. make YOU unable to eat. Nobody is telling other people what to do, it’s called ACCOMODATION. Do you know anyone Jewish who keeps kosher? Perhaps you might be less judgemental if you asked more questions about the WHY and wherefore of Kashrut and Hallal.

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  49. Tout à fait d’accord sur la complexité de l’écosystème. Les formats propriétaires ou liseuses attachées à des plateformes courent le risque de tuer dans l’oeuf le marché du livre numérique. Je me demande souvent comment les gens font pour ne pas se décourager quand ils constatent les difficultés liées à l’interopérabilité des plateformes et des machines et des fichiers…

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  53. もーもーさん、3人のお子さんをかかえながら大変ですね。うちも、大変でした。職場の女の子と浮気→本気になり、「離婚し一人になりたい。」と言うのです。お金もその女の子のために使うようになりました。私は当時専業主婦だったので、自分が買いたいものは遠慮して、夫の買いたいものを優先して買うようにし、苦手な義父母の近くにも住んだり、これまでの結婚生活を考えると、夫の勝手さに心から理不尽さを感じました。でも、結局夫婦はそれぞれの気持ちがあって続くのではないでしょうか。悪いことをしているのは確かにご主人のほうですが、でもご主人が、もーもーさんとこれから一緒に暮らしていきたいという気持ちがないのであれば、理不尽だし残念ですが夫婦は成り立たないと思います。肝心のもーもーさんの気持ちは?うちの場合、私が夫にワンルームを見つけて、悲しかったけど夫に出て行ってもらいました。私は専門職なので仕事はすぐにみつかり経済的なことは何とかなったから思いきれたのかもしれません。ただ、実際に別居してみると、目の前で別の女性を好きな夫を見ずに済む、それだけで本当に気が楽になりました。子供の前でけんかもせずに済む。楽になりましたよ。夫に,自分の大切な人生を丸投げしていた自分が間違いだったと気付いたんです。「自分さえ我慢すればうまくいく。」という考えも間違いだと気付いたんです。夫婦は対等です。「夫が出て行った」というのは、驚くべき事実かもしれないけど、ここは冷静に自分の人生を見つめなおす時間が持てたと思ってはどうでしょう。ただ、別居期間中の生活費を入れないなど、お金がからんで、もーもーさんや3人のお子さんの生活に支障が出るようなことがあれば、弁護士も視野に入れないといけません。半年で夫は「戻りたい。」と言ってきました。なんと理不尽な!!いろんな思いがありましたが、熟慮して、「今後一度でも女性とお金で不透明なことがあれば、直ちに別れる」という条件でまた夫婦をやっています。4年経過しましたが、今のところ夫は反省してよくやっていると思います。でも、当時のことを思い出すと今でも、夫に復讐したくなります(笑)もーもーさん、ちゃんとご飯を食べて、お身体大切に…。

  54. Moser, but perhaps you didnt put it as best as you could have. you see putting it as the ‘civilised world’ you seem to give the impression that the rest of the population of Pakistan and other non western countries are not as civilised as the ‘western powers’ hence your comment was reminiscent of patronising western leaders intent on ‘saving the uncivilised of the east’. we’re not all ‘animals’ they’re a minority and sadly the good parts of countries like pakistan are never news worthy.

  55. Hey Jeff-I have to say that hand cut half-blinds are what turned me from being a machine woodworker who used hand tools to a hand tool guy who sometimes uses machines. Very satisfying.My take on the video is that he kinda makes me feel like I'm at a carnival and he's selling a Ginsu knife. The beauty of handwork is that you can take your time and create, possibly, something that resembles art.If you have a go at the dovetails, the biggest risk is that it may change your whole thinking about the craft — in a good way (I Think?)By the way, how is the workbench system working for you?Chris

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  62. Your indignation over media ethics is quaint. The Journal gets played all the time, and they are complicit in it. I used to warn the credit markets columnists at WSJ and DJ of this all the time (back when I myself was a source). Mostly I was met with a shrug. Reporters are more interested in getting lead stories, breaking headlines, and TV appearances. Besides, all the big financial firms hold press galas at private events at places like MoMa and the Met. That's payoff enough for playing along. What are you offering?

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  69. That makes me feel better… also explains why everyone was so spread out as well. Normally, the pack is pretty tight. I kept sighting at 90 degrees to where I thought I was going, particularly at the end. Glad I finished it! It was an awesomely fun time! Congratulations on your finish! Are you doing it again next year?

  70. It’s good to hear that you are back on the track. I like the part that you said, “That ideas are nothing but clutter for the brain, unless utilized”. I agree to that.So we must not waste having this gift to think on how we use the resources and ideas stuff in our minds.Donna Spears recently posted..

  71. Erst packt man alles ein, verkauft die Sachen dann zum Schleuderpreis… und dann packt man fast alles wieder ein… ich hab da auch keine Lust zu! LG von Rana

  72. Crikey, Donna – The Violent Femmes fairly take me back (great noir band name, too …). And you’ve put me in mind, for some reason, of Nick Cave’s Murder Ballads … and The Mercy Seat. That’d make a cracking novel … Cheers, Dec

  73. Thanks Lynet!!!I saw the tag when reading your blog earlier, and I’ve been thinking about this one. It’s a good subject to tag me with because I feel like blogging has changed my life quite dramatically — as you probably already know from reading stuff I’ve written about it. Pinning it down to five specific things should be a challenge, but I’m up to it! 😀

  74. Уважаемый Шекспир, мне мама сказала, что аргументы типа «виновато общество» не катят. Никто не имеет право причинять насилие ближнему своему.С чего ты взял, что другие читатели «ничего о вас не знают»?По твоей же логике, кстати, прав тот, у кого полнее холодильник.

  75. I'm not exactly sure how Foner presented Lincoln, but it's not hard to make the case that Lincoln had more in common with racists and segregationinsts of the twentieth century than he did with egalitarians of the Enlightenment.I hope that Obama is more straightforward, and less of a politician, than Lincoln was.

  76. Mzonin anteeksipyyntö hyväksytty. Ei tehdä tästä niin virallista, jos oikeasti osataan joka kerta laittaa sama nimimerkki perään. Se voip olla joskus vaikeaa monestakin syystä.Lohi ei pohdiskele asiaa ensimmäistä kertaa Kalajokilaaksossa. Lähtökohta on se, että rauhanyhdistyksen piirissä väheksytään avoimesti oman (huom. oman) seurakunnan toimintaa. Siihen kai jokaisella on sitten joku hyvä syy. Ei minunkaan mielestä sähly ole mistään kotoisin, piti sitä rauhanyhdistys tai mikä taho tahansa (taisi mennä oh-topikin puolelle).

  77. …y a ver si recuerdo antes dónde tengo mi Niño Gilipollas (2ª Edición), que no caigo ahora mismo, con la cosa de la mudanza :-SPero que tenerlo lo tengo, ¿eh?

  78. Demiurgo: Interesantes cuestionamientos sobre la propiedad intelectual, muy acordes a temas actuales como la "piratería" y el compartir archivos (de música, video o textos). Me atrevo a decir que estos temas, en algún momento, nos pueden llevar a consultar lo que es el egoísmo.Saludos, muchas gracias por tu comentario.

  79. Lord of the Rings is aproposMuhammad is the Mouth of SauronObama has the Eye of Sauron as his logoand O's newest desecration-flag has the five bloody finger drag marks of killed Bengazi consulate workers, murdered by O's MoBro terrorist pals, along with his Eye of Sauron "O" symbol.Cut to chase: We Win

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